NICE proposes the withdrawal of six disease modifying drugs

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NICE proposes the withdrawal of six disease modifying drugs

Postby MSUK » Thu Dec 21, 2017 4:47 am

NICE proposes the withdrawal of six disease modifying drugs used to treat relapsing remitting and secondary progressive MS

The Department of Health has asked the National Institute for Health and Care Excellence (NICE) to produce guidance on using beta interferons and glatiramer acetate for the treatment of multiple sclerosis (MS) in the NHS in England...Read more - http://www.ms-uk.org/nice-proposes-withdrawal-six-disease-modifying-drugs-used-treat-relapsing-remitting-and-secondary

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Re: NICE proposes the withdrawal of six disease modifying dr

Postby jimmylegs » Thu Dec 21, 2017 7:10 am

NICE propose restricting future MS treatment options
https://www.mssociety.org.uk/ms-news/20 ... nt-options

"Today the National Institute for Health and Care Excellence (NICE) recommended five Disease Modifying Therapies (DMTs) for MS should no longer be available for new patients in England and Wales.

This won’t affect anyone currently taking them
Everyone with MS who is on these treatments now will still be able to take them. And if you live in Scotland or Ireland this draft decision would not affect you.

Which treatments might be affected?
The draft decision would mean Extavia (interferon beta-1b) will continue to be available on the NHS for new patients.

All other beta interferons, and glatiramer acetate, will only be provided for people who are already taking them.

NICE are proposing to make the following treatments unavailable to people who are newly diagnosed or want to change treatment:

Avonex (interferon beta-1a)
Betaferon (interferon beta-1b)
Copaxone (glatiramer acetate)
Plegridy (peginterferon beta-1a)
Rebif (interferon beta-1a)
They’ve made this recommendation because they believe all these treatments have a similar clinical effect, but only Extavia is cost-effective.'

Charity concern over possible withdrawal of five MS treatments
http://www.careappointments.co.uk/care- ... treatments

'The MS Society has said it is concerned that a proposal to withdraw five treatments for multiple sclerosis (MS) from the NHS could limit people’s ability to manage living with the condition.

The National Institute for Health and Care Excellence (NICE) has today recommended that five MS treatments should no longer be available to people in England and Wales. The disease modifying therapies (DMTs) – Avonex, Betaferon, Copaxone, Plegridy and Rebif – have now been deemed not cost effective.

People already taking these treatments will be able to continue on them but those who are newly diagnosed, or looking to change treatments, would not be offered these options. There are currently 13 DMTs available on the NHS and the MS Society estimates around 9,100 people in England are receiving the treatments which would not be available to future patients. This accounts for 42% of all MS prescriptions. If the proposals were to go ahead, 1,450 newly diagnosed patients each year could be denied what would otherwise be their treatment of choice.

Genevieve Edwards, Director of External Affairs at the MS Society, said: “While people with MS who are already receiving these treatments can be assured they won’t have to come off them, we’re worried about what this proposal means for the future of patient choice. We have made so much progress on treatment options for people with MS, and it would be a significant step backwards if people with MS were now left with less choice and potentially no effective option.

“Many people find certain treatments won’t work for them, or they may have intolerable side effects, so it’s important people can have choice about how to best manage their condition. And we know that treating people as close to diagnosis as possible can limit the effects of MS.

“We want the companies who make these drugs to keep negotiating and come to a deal with NICE and NHS England so that patients don’t lose out. Everyone with MS should be able to get fair and equal access to the right treatments at the right time.”

Natalie Kanji, who’s 36 and was diagnosed with MS in 1997, said: “I had to try five different treatments before finding the right one for me. With the first four, the side effects outweighed the benefits and I was still having relapses. I would get flu-like symptoms, muscular pain and tremors – this was getting in the way of my work and studies.

“It’s good there are so many more treatments available now than when I was first diagnosed. It means I can be in control of my MS and know that I’ve made the best choice for myself. Without these options I’d feel anxious about whether the medication was right for me.” '

NICE web search re DMDs, DMTs (doesn't seem to contain anything specific so far re all of the above)
https://www.nice.org.uk/Search?ps=50&q= ... ies&s=Date

personally while i think certain drugs are beneficial and necessary, in the chronic disease venue i think this whole thing represents yet another case of public pain for private gain.

a pretty lucrative scam, taking patients off the hook of bothering to understand and implement fundamental public health care recommendations, then expecting taxpayers via public health orgs to pick up the tab. but that is just me. probably awesome for GDP though. so yay.
odd sx? no dx? check w/ dietitian
DRI=MINIMUM eg bit.ly/1vgQclQ
99% don't meet these. meds/lifestyle can affect levels
status can be low in ms & other cond'ns
'but my results are normal'. typical panels don't test all
deficits occur in 'normal' range
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