Lyon--I just got the same message.
But I know a little about Barrow Neurological Institute as I am a participant in their North American Research Committe on Multiple Sclerosis (NARCOMS) registry. Usually I get a questionnaire twice a year to complete, but yesterday I got a letter....Here I will vent:
It began, "This letter is to notify you of an important study designed to learn about the informal or unpaid care provided to people with MS to help them cope with the effects of MS on daily life. This study is funded by the National Multiple Sclerosis Society and is being conducted on behalf of the Society by researchers at Mississippi State University and the Public Policy Research Institute at Texas A&M University."
I will not participate in this study and, in fact, intend to write them that I think it is a waste of money and research effort, which would be better used to find the CAUSE of this dreadful disease! Can't these universities make a more valuable contribution? Can NMSS think this is the best use of research dollars? Besides, it seems to me I have read of similar studies and conclusions ALREADY DONE. Another case of re-inventing the wheel?!!!
Thanks for the opportunity to air my thoughts!