This Is MS Multiple Sclerosis Community: Knowledge & Support

ugh has everyone seen or read "corporation" here? another fun one.

I realized--over 30 years ago--there would never be a cure for cancer.

In many areas e.g. breast cancer, the drugs are saving lives and no-one would argue with the cost of these drugs. Average life expectancy is increasing every year as are survival rates from many cancers

The drugs companies are an easy target for our anger

maybe some on quasi-research that we could do without?

Realistically the drug companies have been out of control for some time.

It should be a supply and demand situation.......we demand cures and if the drug companies want our money they need to find and offer those cures but they long ago realized that the real profit is in manipulating the desperation of the victims.

They know that victim desperation creates a situation in which we're going to pay whatever we can for any limited effaciacy they send our way. The proof is in the CRABS, $20,000/year for MAYBE 30% effaciacy and they can't make the stuff fast enough.

Unfortunately there is no entity in the world with the financial means and desire to find real cures. It's pretty easy to see that we are at the mercy of the pharmas until enough people get upset enough to demand changes in the system and that isn't likely to happen.

IF enough people ever got together to demand a change, I'd like to see 10% of the drug company profits go to the educational research institutions to pay for research and clinical trials NOT of the drug companies chosing.

I find it an embarrassment that the richest countries in the world have no alternative means to finance clinical trials for things such as LDN/abx to either prove or dissprove their effaciaceness so that the matter of a few million dollars leaves us to permenantly guess.

Something is badly wrong with the picture when we have made the drug companies filthy rich and only they have the financial ability to fund the studies which obviously will always benefit them.

Bob

ugh has everyone seen or read "corporation" here? another fun one. basically its point is that it is up to us to find a way through the corporate agenda, so i guess in the case of ms that would ideally be without supporting the crap half measures. i think in my case it's a little easier to buck the system because i don't really agree with the diagnosis - in fact i will restate here that i think the diagnostic tools are pretty useless and vague - and think my problem is primarily nutrition related. but i'm on the boycott the bad guys bandwagon for sure.

okay and furthermore, why the HELL, when there is so much research showing the highly significant differences in nutritional status of ms patients, aren't micronutrient status testing and supplementation part of the treatment you receive through your local ms clinic? it's INSANE. "just eat a balanced diet, you'll be fine, oh and take this massively expensive shot every couple of days to replace the function of an immune system that is out of whack because it doesn't have the chemical tools it needs to work with in your blood, but we haven't got any idea how to remedy that lack, no no." it should be illegal. malpractice maybe. well i have to go i'm supposedly writing an essay at the moment!