again, I agree. But, I don't believe in complaining without proposing something that is realistic to get to the end. IMHO, folks complain all the time. Complaining is cheap and easy, like monday morning quarterbacking. Hey, I'm a very unhappy redskins fan, ok. My point, talk is easy and finding others to share in ones anger is easy to. But, why not choose then to not be a victim? I say take this energy and run for public office. Or start a protest and get media attention? It's not that hard if you do it with compassion and smarts. napay
It's Monday morning, I need to put up or shut up
Somehow the prospect of one person against the drug companies doesn't seem to be very good odds.
Until this thread I hadn't even considered the fact that there is no one in this whole great world whose only incentive is to find the "cure" for MS as we would like it to be. In that I mean by leaving no stone unturned and by any means necessary, regardless of the prospect of profit.
Now I find it understandable why the cure for MS has been so long in coming. If there is anyone out there who is leaving no stone unturned and by any means necessary, regardless of the prospect of profit in their search for the cure for MS I would love to know who it is.
Don't ever shut up. Friendly debate, discussion and argument is the kind of activity we all need. This is why, I believe, we are all here. OMG, There's hundreds of folks working on this illness. We likely have thousands of MS dedicated "Patch Adams Doc Dudes" out there running round in white lab coats. I'll name Howard L. Weiner as one person.
Our world is not full of completely unselfish, totally giving Saints. I'm sure there are Saints amoung us. But the vast majority of humans are by nature not so freely giving and living a life free of all possessions.
I know Howard needs to earn a living and doesn't want to live in the slums of Calcuta. I'd be happy to have our own Micheal J. Fox. We don't have a Michael J. Fox, Jim Brady, Cindy Sheehan, Martin Luther King, Christopher Reeves or Bono. But when I look at the pipeline post, I see hope. Not blind hope, but hope in percentages. Someone's gonna win a Nobel Prize curing this one day - soon.
There's billions being spent, maybe not in the most ideal ways, but when boiled down to the 100k and 10k level's the folks who are doing the work, I believe, are feeling that what they are doing will advance the science. OMG, science didn't even find the Dendritic cell until the 70's!!! Stuff is happening.
On the otherhand, there are rules, administration and red tape to most anything. 3 people died in the Tysabri trials - it's a personal decision regarding how much risk we are willing to assume in order to get a cure faster. Example, some couldn't wait to get on Tysabri and today there are still others who want to see more info about effectiveness and safety. In the case of the FDA, we have some of these decisions made for us by our government, so we can't easily get our hands on very risky treatments. There at stops and checks and balances put in that slow things down. There's medical research protocol. There's the statistics they have to generate. There is the P value.
Frustrating, YES. I'd ask if you have read Dr. Weiner's book. If not, you might get a picture on this that is more positive for you and somewhat explanatory. Cure? No, but right now, I'll settle for being informed and yes, if you run for President, I will vote for you. napay