Lyon wrote:Hi napay,notasperfectasyou wrote:again, I agree. But, I don't believe in complaining without proposing something that is realistic to get to the end. IMHO, folks complain all the time. Complaining is cheap and easy, like monday morning quarterbacking. Hey, I'm a very unhappy redskins fan, ok. My point, talk is easy and finding others to share in ones anger is easy to. But, why not choose then to not be a victim? I say take this energy and run for public office. Or start a protest and get media attention? It's not that hard if you do it with compassion and smarts. napay
It's Monday morning, I need to put up or shut up Somehow the prospect of one person against the drug companies doesn't seem to be very good odds.
Until this thread I hadn't even considered the fact that there is no one in this whole great world whose only incentive is to find the "cure" for MS as we would like it to be. In that I mean by leaving no stone unturned and by any means necessary, regardless of the prospect of profit.
Now I find it understandable why the cure for MS has been so long in coming. If there is anyone out there who is leaving no stone unturned and by any means necessary, regardless of the prospect of profit in their search for the cure for MS I would love to know who it is.
bromley wrote:I've never been a supporter of the drugs companies are bad / greedy / obessed with profit / found a cure but not telling us / only interested in selling us drugs for life brigade. I've never worked for one or own shares in one, but the researchers who work for these companies are people like some of us - went to University, excelled in biology etc etc, got a job in an industry where their skills were needed. I can't believe that they are forced to sign a form saying "if you find a cure for a disease keep it to yourself".
So for those who do support this view - what should they do. Never buy a drug from these companies again? Petition government to close them down? Why don't we transport ourselves back to the 1750s when life expectancy was probably 40. When childhood mortality was incredible high? No cure for smallpox then. No operations. A simple world where people got diseases and died from them because there were no treatments!
Perhaps I have been lucky and have come into contact with MS researchers / experts who are dedicated to solving this complex mystery. Who work long hours trying to make some headway. The Professor for the UK MS Tissue Bank says that he was interested in researching MS because it was challenging and because he has a family member with the disease. Does anyone really think that he isn't working his socks off to solve this riddle?
I received the following comment from one of my contacts working in MS research:
RESEARCH IS A BIT LIKE A LOTTERY – YOU HAVE TO PLAY AND THEN SPREAD YOUR BETS IN THE HOPE OF HITTING THE JACKPOT. I THINK THE ODDS ARE GETTING BETTER.
An honest yet postive assessment of the challenges faced by such researchers. And if such research proves successful and the drugs companies trial and test and market treatments as a result of such research, are we going to deprive our children / grandchildren from having these treatments if they get this disease, on the basis that drugs companies make profits from them?
Our faulty genes are to blame for us getting this disease, and an environmental factor that our bodies couldn't deal with unlike the majorty of people. If we want someone to blame it falls closer to home. Blaming the drugs companies and researchers is not the answer.
I am as bitter as the next person for getting this disease. But incredible advances in technology (scanners, computer power, the internet etc); more money than ever poured into MS research; more companies than ever researching new treatments; incredible advances in understanding genetics, the immune system, how the brain compensates following damage; will lead to improved prospects for those with the disease.
I am as much a conspiracy theorist as the next person - but what's coming next on this tread? That drugs companies create these diseases? That MS is unknown in countries where there are no neurologists?
Hope is why I come on this site. To hear about breakthroughs, people doing well on new treatments. Let's try and be a little bit more hopeful. And put some faith in the fact that some of the MS researchers and the employees of drugs companies are there for the right motives - to alleviate suffering and give people a future to look forward to.
You can buy stock in the Pharma Industry. I own Pfizer, Biogen and Opexa. I'm not getting rich doing this. So you say, it's the management that's raping the ill. They have jobs. They might be making a million a year, but that's their job. They spent years in expensive colleges to get those jobs and made other personal sacrafices to get them. My job doesn't pay that much, but I'm not the lowest paid person at my office either. So if the cost of the drugs isn't unreasonably going to the shareholders or the employees, where does it go?
Lyon wrote:I don't know if I'm getting tired from reading and typing but these really huge undertakings you are proposing are making more and more sense to me and are seeming less and less impossible
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