when MS is NOT MS

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.
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Tim
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Post by Tim »

Hi again Amelia, I saw on Gayle's site that you did contact the Dr that posted on our Google Group. Thats great and I hope you are able to get into the study. I only wish the testing could be done closer to home. I also wish that Keith had been able to get into the study. Dr. K called me and said she had only a few spots left so I hope things work out. Tim
Check out my Devic's support group on Google. We have over 120 members world wide and several doctors and researchers that monitor the posts.
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amelia
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Post by amelia »

I did not know about the traveling until AFTER I e mailed her. There is no way Gary can make that trip. We just want to get a hold of his regular DR which is getting harder and harder to do! I would go to a Devic's specialist. haha
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beyondms
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Post by beyondms »

Hughes (antiphospholipid) syndrome (APS) can mimic multiple sclerosis (MS). The authors of this article believe that testing for aPL should become routine in all patients with MS:

http://www.ncbi.nlm.nih.gov/entrez/quer ... t=Abstract

Another site is the Hughes Syndrome Foundation:

www.hughes-syndrome.org

Look at how the MRI and symptoms can easily mimic MS in some patients suffering from Hughes Syndrome. The good news is that this syndrome can easily be treated using anti-coagulants.

beyondms
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amelia
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Post by amelia »

The saddest thing is when they did not know what was going on with Gary, they called it everything in the book, EXCEPT DEVIC's. When others were ruled out, it should have been tops on their list. We can't blame our present Neuro since there have been virtually no testing going on while Gary has gone to her. Also, the records already showed him as having MS. No reason to doubt it. At our request, she did not do MRIs because of lack of money.
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