Anecdote wrote:Look, Beyond, if you are already taking that amount of doxycycline, you might as well go the whole hog like me and take the Stratton or Wheldon regimes properly. This includes the adjuncts. You will need to do it assiduously and not be half hearted about it but it should stop the disease in its tracks, which is more than you can expect from anything else.
"I have been taking supplements forever. I am not sure they're helping. I also recently started 100 mg of doxycin, twice a day. We shall see if this does anything."
"The fact that I am progressing concerns me but I remain hopeful. I wonder why the 100 mg of doxycin twice a day isn't doing anything."
Anecdote wrote: How long have you been taking the doxycycline? Abx treatment isn't an instant thing. I reacted quite quickly because I was progressing downhill in the end so fast, but other people take far longer. For instance, Katman, in the Regimens section and CPn Help, has PPMS but took about nine months before she started to turn the corner.
Anecdote wrote: Don't be surprised if you appear to get worse before you get better. Katman is the prime example of this: it took her about nine months before turning the corner.
At this stage there has been axonal damage and that usually can't be repaired.
Anecdote wrote:As Alex said, take calcium and magnesium two hours apart from doxycycline. You can have milk in your tea, coffee or cereals, though. I take cal/mag last thing at night, doxycycline when I am taking it, with breakfast. I take both lots together then with a glass of water, then straight away eat breakfast because otherwise I feel dreadfully nauseous. You might be able to do this to avoid headaches.
beyondms wrote:Here is the problem: it is best to take vitamin D, calcium and magnesium with a meal. Let's say I take 2,000 IUs of vitamin D, calcium & magnesium, B12 with lunch and dinner, then I have to wait 2 hours to take my doxycyclin.
brainteaser wrote:there did not appear to be axonal damage as the spinal chord was fairly regular in its appearance.
I don't mean to stray from the topic but I was interested by this comment. I also thought I had axonal damage as a result of my increasing disability. However my neuro who is also a leading researcher was examining my most recent MRIs when he told me a couple of interesting things viz. he could see only 1 lesion whereas I thought there had been 4 and secondly that there did not appear to be axonal damage as the spinal chord was fairly regular in its appearance. Apparently, if there is axonal damage, the lower part of the chord can appear withered.
So I was wondering if you knew for sure that there had been axonal damage with your wife or were you simply assuming this? You may like to get another MRI.
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