HarryZ wrote: The true measure of MS is symptoms and disability progression. It really doesn't mean much as to how many lesions an MRI may show because lesions can come and go or perhaps not even be detected.
100% correct. I want all MS patients to understand this. I recently did my third MRI and there were no enhancing lesions. Great news, right? Wrong because my disability is objectively and subjectively getting worse. Not by much but enough for me and others to notice.
I wake up every single day with back aches. I have to lie on the floor in the morning and at night to relieve the pressure on my back. I should be swimming but I am so demoralized that I do not want to see a gym. This is my bad attitude and I need too overcome this. I also think I need a new matress (Tempurpedic???)
Now, I do believe that all therapies that deal with halting the inflammation will benefit mostly newly diagnosed patients because their neurons are still relatively intact. Exciting new oral therapies will be out soon. Stay tuned.
The PPMS and SPMS patients need to rely more on new therapies that will regenerate nerves in order to feel better. These therapies are still 5 years away but you never know because stem cells are taking off according to my neuro. In fact, he is convinced that stem cell treatments hold amazing promise for many MS patients. I hope he is right.
Back to the supplements. Why don't I just take 200 mg of doxycycline at night or at lunch and leave the rest for dinner? Maybe this makes sense but I prefer trying to evenly distribute the supplements throughout the day.
Today, I woke up and immediately took my 100 mg of doxycycline with water and vitamin B12. I need to figure it out but I find that taking 200 mg of doxycyclin in one shot gives me a headache. And I still have not added the other stuff recommended by the Wheldon protocol.
I thank you all for your input and wish you a great week.