Relapse/Remission/Why?
All I can say is that EVERY relapse my daughter has had was directly related to a highly stressful situation. I have an incurable, no treatment disease--intersistial cystitis. I have had 2 severe bouts, each preceded by a severe diet change. I successfully treat this problem with diet change and supplements.
- gibbledygook
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There was a very interesting presentation by some prominent doctor on this very subject. Cannot remember where I read it? He showed 2 patients--one who had had numerous relapses and NO new lesions; one who had had no relapses and lots of lesions. That's the misnomer with the CRAB drugs...they to NOT stop disability! Just supposedly reduce relapse rate. But how do you judge that when there is no relapse pattern to this disease?
If you haven't looked into what Accelerated Cure Project for Multiple Sclerosis is doing, you should. They are definitely looking for a cure and determining its causes. I hold a lot of hope in what they are doing and fully support them and hope others do also. They have facilitated research, set up MS repositories in major institutions and developed a "Cure Map". If you aren't familiar with their work then check them out at www.accleratedcure.org. I know many members of this site are familiar with their work but perhaps many others are not. I believe they are on the right track and are doing a lot of positive things. Art Mellor has dedicated his life to this.
Lori
Lori
Bob
When I was first diagnosed 4 1/2 years ago I, like I'm sure everyone else, researched as much as I could on the web. Came up with some good sites and some not so good sites. Accelerated Cure (then known as Boston Cure) was the one site that gave me good,valid research without scaring me to death! That is how I felt about them then. My husband and I have gotten to know Art Mellor very well and understand Accelerated Cure's mission. We have a lot of hope in the organization. I hope as you look into it you see the same positives that I do. The repositories that have been set up is a really big deal. They have relationships with Johns Hopkins and Beth Israel Deaconess in Boston for example. So they are serious. That's one of the many reasons I feel so good about them. Let me know what you think once you check them out.
Lori
When I was first diagnosed 4 1/2 years ago I, like I'm sure everyone else, researched as much as I could on the web. Came up with some good sites and some not so good sites. Accelerated Cure (then known as Boston Cure) was the one site that gave me good,valid research without scaring me to death! That is how I felt about them then. My husband and I have gotten to know Art Mellor very well and understand Accelerated Cure's mission. We have a lot of hope in the organization. I hope as you look into it you see the same positives that I do. The repositories that have been set up is a really big deal. They have relationships with Johns Hopkins and Beth Israel Deaconess in Boston for example. So they are serious. That's one of the many reasons I feel so good about them. Let me know what you think once you check them out.
Lori
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