For gibbledygook

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For gibbledygook

Postby mormiles » Wed Nov 29, 2006 4:05 pm

Fair warning to anyone who likes to put on blinders---I'm the oddball who has sought out comprehensive treatment for my husband who has SPMS. For background see http://www.thisisms.com/ftopict-3055.html. And yes, if you're curious, he is improving very nicely on the Wheldon combined antibiotic protocol, antivirals, heavy metal chelation, LDN, and a slew of carefully selected supplements.

Some interesting information has recently crossed my path that I want to share with gibbledygook and those others who are interested to expedite CNS repair once the causes of their MS have been addressed (see http://www.thisisms.com/ftopict-3061.html). During my husband's appointment with his neurotologist (neurologist + otologist) this week, we told him that my husband's father had just been diagnosed with a very rare and advanced form of the rare disease mycosis fungoides (another "incurable" one where the immune system appears to go whacko). The doctor sees several patients with this illness, a few of whom have reached cured status. The reason he sees these patients is because dementia goes along with the skin symptoms; his treatment for these patients is very much like my husbands's treatment. He verified my suspicion that it was a polymicrobial illness, but he stretched the causal musings even further.

The doctor indicated that since my husband and his father are both affected with these types of illnesses, since he knows my husband has elevated heavy metals, and since the other mycosis fungoides cases he treats involve elevated heavy metals, Dad's illness most likely also involves elevated heavy metals. He went on to explain that there is probably a genetic predisposition to produce too little metallothionine. That metallothionine deficit affects some critical bodily processes, not the least of which is glutathione production. Those with a metallothionine deficit end up with glutathione depletion. Ahhh, glutathione depletion, one of my favorite topics. This is an area where it pays to look into MS's commonalities with other chronic inflammatory illnesses. If you google "multiple sclerosis glutathione depletion," mostly what you get are articles that indicate that it exists in MS. Folks, the chronic fatigue/fibromyalgia communities are way ahead of us on this---check out this paper at http://phoenix-cfs.org/GluAACFS04.htm. This paper will give you a good idea of how people with glutathione depletion are vulnerable to chronic infections of multiple microbes. So now the good doctor takes us to the root of the root of the root.

Before I go any further, I should say that what is being discussed here are subsets of chronic inflammatory illnesses, not a blanket application. Anyway, gibbledygook et al, this is where your interest lies. When I googled "metallothionine," I found a webpage at http://www.heartfixer.com/AMRI-Outcomes-Non-CV-Autism.htm that piqued my interest, because my husband also has dyslexia, one of the autism spectrum disorders, and because the doctor treats autistiic kids in a similar fashion to the way he treats adults with neurodegenerative illnesses (like MS). That webpage tied alot of these ideas together, but I wondered if there was treatment information for MS discussed on that website. Oh yes, there is, and that was interesting. Then I navigated back to the home page and "fact sheet" of heartfixer.com to find out more about this treatment. This "Magnetic Molecular Energizer" may be science fiction, but maybe not. The practitioners using it claim that it increases the velocity and wobble of the electrons of molecules in the area of focus, thereby increasing chemical reactions, thereby accelerating biological functions, thereby possibly enhancing healing and regeneration...even nerves. Enjoy the journey!

NOW, all that being said (and read), if MME is for real, I have a concern. Your own cells are not the only living things in one of those areas of treatment. Every human being is sharing his or her body with billions of microorganisms. If the biological processes of the host are being revved-up by MME, the same surely holds true for the microorganisms. For the subset of MSers (and others) who are afflicted with chronic infections that have not been addressed, the overpopulation of the microbes might be unintentionally boosted. Who wins?
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Postby gibbledygook » Thu Nov 30, 2006 1:00 am

Goodness! Thankyou! In fact I added glutathione as a supplement only a month or so ago. I'd better start taking it more seriously!

Thank you very much mormiles.
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Postby CureOrBust » Thu Nov 30, 2006 4:36 am

mormiles wrote:If MME is for real

They lost me at:

MME wrote:The rate of healing can be accelerated beyond that typical of the human body. For example, a bone fracture that typically requires 6-8 weeks to heal may require only a few days with MME treatment (giving my kids' sports teams an incredible and totally unfair advantage over their competition).

Now, that claim would be pretty easy to prove; and would only take "a few days".
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Postby gibbledygook » Tue Dec 05, 2006 10:43 am

Mormiles, how much glutathione do you try to consume every day. I'm only on 100mg and perhaps this isn't enough?
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glutathione

Postby mormiles » Mon Dec 18, 2006 1:35 pm

Hi gibbledygook, Sorry for the delay; I've had a recent health problem that has severely curtailed my ability to spend time at my PC. Neither my husband who has SPMS nor I consume any glutathione. He takes four 600mg capsules of NAC and a tablespoon of a supplement called IgG 2000 DF made by Xymogen for his glutathione precursors. I also take four 600mg capsules of NAC and drink two whey protein shakes every day (my husband can't do this due to casein sensitivity).
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Postby Chris55 » Mon Dec 18, 2006 2:26 pm

Mormiles--HIIIIIIIIIIIIIIIIIIII! Chris here. Suzy update: OOPS--my boss said I have to leave. Will get back to your tomorrow!!!

SO GLAD TO HEAR FROM YOU--have some news!
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Postby Chris55 » Tue Dec 19, 2006 6:59 am

Okay, new day. Suzy finished her supplements and within 5 days, her severe upper respiratory ailments were back along with joint pain that "moves". Sent another sample..came back severe strep infection (still) as well as fungal infection.

She has had severe itching in her arms from day one. I was never convinced it was MS. She gets sores and her symptoms mimic a fungal infection, as well as the symptoms of this new disease, Morgellon's Disease.

She is back on supplements and doing quite well except for the itching arms. I am now going to digest this post of yours...bit by bit. Please keep us updated--Chris
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Morgellon's

Postby mormiles » Tue Dec 19, 2006 11:55 am

Hi Chris, Good to hear from you too. Sounds like Susie has more than one chronic inflammatory illness going on. I pray she doesn't have Morgellon's---it would be better for her to have MS. Effective treatment for MS isn't available on every corner, but at least it exists. Nobody seems to know exactly what Morgellon's is or what to do with it...in the meantime, the afflicted are treated like it's all in their imaginations and suffer greatly from the bug-crawlies and cognitive function problems. I posted on the subject of Morgellon's on CPn Help.org this Fall. The most informative link I found at that time presents a scenario of different pathogens working in concert to an appalling detriment to the host: http://www.rense.com/general72/weirdbug.htm. You might also check into mycosis fungoides.
Last edited by mormiles on Wed Dec 20, 2006 10:49 am, edited 1 time in total.
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Postby Chris55 » Tue Dec 19, 2006 1:06 pm

Agree Morgellon's isn't on anyone's wish list that's for sure! I am convinced it is a fungal infection--not MS related. But then, what do I know right? During her first supplement treatment, one of the supplements served to completely stop her arm itching/sores. She just doesn't know which one it was. With this course, if it happens again, she is going to make note of all the supplements and then start isolating them until she finds the one that works if that is necessary.

I will study the links/suggestions you've provided.

Good to hear from you and stay in contact! Chris
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