The Letter

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

The Letter

Postby robbie » Thu Nov 30, 2006 1:04 pm

What about a letter that expresses all our concerns and our need for more in the way of treatments and the research findings we need to get our lives back. This would be a world wide partition with who knows how many signatures to express the feelings of people with ms. We could have a collaborative effort to design a cover letter of what we need to say and let this letter take its course around the world. We all know someone with ms so when the letter gets to us, it has a forwarding address of someone else with ms and that person in turn sends it along with another address and so on and so. This letter will be alive with our hearts and will not stop until it has reached everyone and then gets to the people that need to see it. Is this a good idea and is it possible…?
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letter

Postby gwa » Thu Nov 30, 2006 3:36 pm

robbie,

There are all kinds of researchers trying to find a cure for this disease. I have seen one scientist on the "Discovery Channel" who has been chasing the cause of MS for three decades.

Look at the list of over 100 treatments listed on the drug pipeline part of this website. Much of the research is being conducted by university professors and medical people who have everything to gain, both professionally and monetarily, if they could find a decent treatment for MS.

I want for you to pay more attention to the positive happenings going on in the research field and less to the naysayers. There have been a couple of papers posted here during the past month which conclude that scientists have found the causes of MS.

Better treatments are close to fruition and then we can all get on with our lives. Until then, plug in an "Elvis" CD and cheer up.

Hugs.

gwa
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Re: letter

Postby Lyon » Thu Nov 30, 2006 4:42 pm

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Postby robbie » Thu Nov 30, 2006 5:08 pm

Didn't mean for this idea to be negative, I don't doubt that the scientists are doing all they can, maybe the politics of this cause need a little jump start.
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MS causes

Postby gwa » Fri Dec 01, 2006 10:06 am

lyon,

Here are a couple of posts which show findings about the causes of MS that I had in mind. There are many more upbeat discoveries being reported monthly. I think these reports are very forward looking as to treating or stopping this disease.

At the bottom is a link to medical news today that has a lot of positive research findings about causual factors in MS.

I think the researchers are moving rapidly ahead as technology allows. For sure, researchers are not sitting on their duffs; they are looking for causes of MS and cures or treatments.

When this is all over I am going to buy robbie a beer for being so patient. I will also share my "House of Commons" candy bar too. :wink:

gwa

http://www.thisisms.com/ftopict-3220-par3.html

http://www.thisisms.com/ftopict-3100-my ... +formation

http://www.medicalnewstoday.com/section ... sclerosis/
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Postby robbie » Fri Dec 01, 2006 10:12 am

Sounds good gwa i will take u up on that.. :D
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Postby Lyon » Fri Dec 01, 2006 1:31 pm

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Postby robbie » Fri Dec 01, 2006 1:37 pm

I think your right bob and i am very happy to see all the new improvements in therapies that are comming out all the time. I to think that having ms in this period of time is a big benifit. :D
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Postby Lyon » Fri Dec 01, 2006 2:36 pm

oo
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Postby robbie » Fri Dec 01, 2006 3:11 pm

It's better to consentrate on the people who have a better chance of not being permentantly affected.It's eaiser to stop someone from dying than to bring them back from the dead...People who are in their early years really have reason to holds their heads up and beat this thing down.. :D
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Postby Lyon » Fri Dec 01, 2006 3:32 pm

oo
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Postby robbie » Fri Dec 01, 2006 4:39 pm

Thats one way to look at it, I want everyone to get better but i just can't seem to get as excited about these drugs. Do i want to let them shoot me up with these powerful drugs for limited results i'm just not sure.Only time will tell, but i will stay possitive and for now just deal with what is here, and know there is help comming... The folks that agree to these drugs just want it to stop as do i and i truly hope they help, Mayby i'm learning to accept what has happened and find the little things that i like and still enjoy. There is a small feeling of good being drug free, am i crazy to feel this way not really sure anymore.. I have led eyeryone to think that if he's so desperate why dosen't he try anything, it's the old put up or shut up thing.. The feelings i have that way are in the back of my mind now so will see..

And who can say where the road goes,
Where the day flows?
Only time...

Who knows?
Only time...

Enya.
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