blood pressure and ms

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

blood pressure and ms

Postby mick_b » Fri Dec 01, 2006 11:28 am

Hi:
Has anyone developed “quick onset hypertension”? My blood pressure is always high at the dr’s office (150/90) office but then goes back down. I got taken to an emergency room (see my post in daily life) and it stayed up the whole 8+ hours at 160/116 yikes!. I found a story that described a similar experience at

http://infoonms.bizland.com/aboutus.html

It’s sounds tough to treat but I’m not so sure how current the info is.

Any experiences would be appreciated. I’ve checked it today and it’s normal.

Thanks

Mick
User avatar
mick_b
Family Member
 
Posts: 40
Joined: Sat Jul 29, 2006 3:00 pm
Location: Western NY

Advertisement

Postby ewizabeth » Fri Dec 01, 2006 2:22 pm

Hi Mick,

I've had high blood pressure since my diagnosis, currently taking two meds, Norvasc and HCTZ.

Anti-depressants also seem to help it stay down, although at times I have needed a beta blocker. I took Toprol XL for a couple years. That made me so sleepy though.

I hope your doctor gets this under control. A stroke would be much worse than MS.
Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.
User avatar
ewizabeth
Family Elder
 
Posts: 270
Joined: Fri Jun 25, 2004 3:00 pm
Location: Near Chicago

Postby CureOrBust » Fri Dec 01, 2006 4:41 pm

mick, there are some studies that have found that heart conditions are possibly caused by CPn infections (which are hard to detect in living people), and some believe that MS is caused by CPn infections. Many people who have tried the abx regimines have found that their blood pressure has dropped. Personally, mine is very low, and always has been low. Just a thought that might warrant further investigation for you.
User avatar
CureOrBust
Family Elder
 
Posts: 2914
Joined: Wed Jul 27, 2005 3:00 pm
Location: Sydney, Australia

bloodpressure

Postby mick_b » Fri Dec 01, 2006 4:53 pm

ewizabeth:

Thanks for your reply. My dr. has been watching it for a long time. I always came down. then I got sent by ambulance to the emergency room and it stayed up (see my post in the daily life forum). They don't want to give me anything unless it stays up for a long time. I'm sure it's high when I walk around. I just don't know if constant, temporary spikes will start to damage things.

CureO

thanks - the doctor at the emergency room specifically checked for a number of infections I didn't get a list so I don't know if CPn was one of them. I plan to get a list and start looking into it I'm not currently on any of the crabs and because I have ppms

thanks for the response
.


Mick
User avatar
mick_b
Family Member
 
Posts: 40
Joined: Sat Jul 29, 2006 3:00 pm
Location: Western NY

Re: bloodpressure

Postby ewizabeth » Fri Dec 01, 2006 5:07 pm

mick_b wrote:ewizabeth:

They don't want to give me anything unless it stays up for a long time. I'm sure it's high when I walk around. I just don't know if constant, temporary spikes will start to damage things.



Hi Mick,

I had a very similar situation. Mine would be high when at the doctor's office. Then once after a steroid treatment, it was spiking up to over 200/120. That sent me to the ER (with chest pains)... They kept me overnight in ICU on monitors, and put me on some very heavy BP meds to get it under control. Since then, I've had a regular cardiologist. He was my on-call doctor in ICU, and so I kept him because he was so competent.

I used to SWEAR to him that the BP went down when not at the doctor offices. He decided to do a 24 hour test on me to find out for sure. He put a 24 hour monitor on me, it tested my BP about every 20 minutes, and kept a record of it.

I went back to see him the next day and the nurse put the readings into the computer. Well, they proved me wrong. It was very high, even while I slept to some extent.

Soooo, I had to take the beta blocker Toprol XL, in a higher dose. I wasn't happy about it, but I was grateful to have it confirmed with that test. Maybe you could have that done?

I have seen what happens from ignored high blood pressure in my own family, so I'm very sensitive to this particular subject.
Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.
User avatar
ewizabeth
Family Elder
 
Posts: 270
Joined: Fri Jun 25, 2004 3:00 pm
Location: Near Chicago

24 hr monitor

Postby mick_b » Fri Dec 01, 2006 5:27 pm

ewizabeth:

I understand, the 24 hr automatic monitor would clear a lot of things up, especially if the 24 hours includes a trip to the doctor's office . I'll ask for one the next time I go which is on the twelfth of December .

Thanks for the tip

mick
User avatar
mick_b
Family Member
 
Posts: 40
Joined: Sat Jul 29, 2006 3:00 pm
Location: Western NY

Re: 24 hr monitor

Postby ewizabeth » Fri Dec 01, 2006 5:58 pm

mick_b wrote:ewizabeth:

I understand, the 24 hr automatic monitor would clear a lot of things up, especially if the 24 hours includes a trip to the doctor's office . I'll ask for one the next time I go which is on the twelfth of December .

Thanks for the tip

mick


You're welcome Mick. Let me know what you find out from the doctor and if you get the test.
Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.
User avatar
ewizabeth
Family Elder
 
Posts: 270
Joined: Fri Jun 25, 2004 3:00 pm
Location: Near Chicago

Re: bloodpressure

Postby JFH » Sat Dec 02, 2006 3:16 am

ewizabeth wrote:I used to SWEAR to him that the BP went down when not at the doctor offices. ...
A "white coat" effect is acknowledged by medics when taking BP in a clinical context.
ewizabeth wrote:Soooo, I had to take the beta blocker Toprol XL, in a higher dose. I wasn't happy about it ...
Beta-blockers are a bit out of fashion in the UK for the ongoing treatment of HT here's a good link that describes current prescribing best UK practice. http://www.bpassoc.org.uk/information/medications.htm
John
I am what I am
User avatar
JFH
Family Elder
 
Posts: 288
Joined: Sun Jul 11, 2004 3:00 pm
Location: England

Postby SarahLonglands » Sat Dec 02, 2006 7:06 am

Mick, maybe you don't need to worry : the fact that your blood pressure goes up and down so much is a sign that your circulation is healthy rather than the opposite. Its if it never alters from a high position that you need to worry. My blood pressure when sitting still and relaxing is only about 100/55 but on exercising I can get it up to double that, but it very quickly falls back. A 24 hour monitor would show you whether you have a problem, but I doubt that you do.

I am, it is tru,e on one of the abx regimes, but like Cureo my blood pressure has always been on the low side. Other people have shown remarkable improvements, though.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2120
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

nerves

Postby mick_b » Sat Dec 02, 2006 9:06 am

Hi Sarah:

Thanks for the reply.

I'm going to keep a close eye on it and get a new cuff if the old one is off.

I was surprised that it stayed up for the whole time I was in the ER. I must have been more nervous than I wanted to admit.

Thanks again, btw I love your work !

Regards

Mick
User avatar
mick_b
Family Member
 
Posts: 40
Joined: Sat Jul 29, 2006 3:00 pm
Location: Western NY

Re: bloodpressure

Postby ewizabeth » Sat Dec 02, 2006 9:25 am

JFH wrote: Beta-blockers are a bit out of fashion in the UK for the ongoing treatment of HT here's a good link that describes current prescribing best UK practice.


Hi JFH,

My MS neuro prefers that I can do without the beta blocker too, because of the side effect. Here in the US though, it is generally the second med used in treatment...

http://mayoclinic.com/health/high-blood ... DSECTION=8

They really do help me, and right now my resting pressure is 137/94, and that's with Norvasc (a cardio channel blocker) and HCTZ, a diuretic.

My only real problem is stress, I have enormous stress at times (like now).

I think that is why the beta blocker works so well for me. Thinking I need to call the cardiologist for another RX of it, or ask him what else I can do. :(
Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.
User avatar
ewizabeth
Family Elder
 
Posts: 270
Joined: Fri Jun 25, 2004 3:00 pm
Location: Near Chicago


Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service