First--Jimmylegs, go to "Vonnerhealth.com". That's Dr. B's website (the doctor who is providing the supplements to my daughter.) Deannaruth--I am "Netherlands" mother. She continues to do very well. As I said, the real test is going to be her MS doctor visit in Feb. and her annual MRI. Suzy, my daughter, is SO positive it's almost frightening sometimes! And she is doing so well. She lives out-of-town, and everytime I get to see her, all I see is that beautiful, glowing, "healthy" face! I have missed her so!
BTW, I inhabit another website provided by a lady who has completely controlled her MS with nothing but nutrition, exercise, stress-reducers, etc. I actually just received her latest update--her first since she tragically lost her 42 year-old son to lung cancer. I am going to share it in case anyone might be interested. I also just talked to my daughter about adopting a healthy lifestyle now that she actually FEELS like investing in her overall health. She already started! Anyway, here's the post from Betty:
Do Lifestyle Changes Really Help Your MS?
First let me establish that I include DIET, EXERCISE, SUPPLEMENTS and STRESS REDUCTION as elements in this category of lifestyle changes. Which element is most important? I HAVE NO IDEA! All I know for sure is that together they work. I also believe that for some the diet is most important, while for others the exercise seems to play a more important role. And for some the supplements may be the most important.
It is 12-1/2 years since I was diagnosed, and I have experienced no progression at all since I began these lifestyle changes. Remember that I was diagnosed with Primary Progressive (PP) MS, which is supposed to continue to gradually progress, usually at a rapid rate. For anyone to have PP MS and experience no progression over a 11 to 12-year period, as I have, is very unusual. Neurologists who have seen me just shake their heads and say, whatever you are doing it is obviously working...just keep doing it! Just today I saw my primary care physician for something minor, and he looked at my record and noted that I hadn't seen him since June of 2005. He said to me, you must be the healthiest patient I have!
DIET: Most alternative health care physicians today recommend that EVERYONE eliminate processed (convenience) foods as well as white flour, sugar, and animal fats, and anything made from them, from their diet. By doing that alone you are better than half way to the suggested restrictions of the so-called Best Bet Diet for MS. I often suggest to people who are having a difficult time with the diet that they first become comfortable with eliminating white flour, sugar and animal fats.
Remember that your body is designed to be self-healing, and if diet revision does nothing else for us it most certainly will help us live a longer and healthier life. And the healthier we are the better chance our body has of resisting the tendency of what doctor's call Multiple Sclerosis to progress.
EXERCISE: It is my firm belief and observation that no one can prevent MS from progressing without a good, consistent exercise program. I also believe that program should consist primarily of stretching, deep breathing, and strength building exercise to whatever degree we are able.
The reason I use and recommend Shoosh Crotzer's Yoga for MS video/DVD program is that it has been so beneficial for me. Shoosh has modified Hatha Yoga for use by people with limited mobility, and it is, I believe, THE ideal program for MS. The oft-repeated phrase, "Use It Or Lose It" certainly applies to the person with MS.
SUPPLEMENTS: There are really only three supplements that we absolutely know scientifically are beneficial for MS. They are:
Vitamin D (4,000 i.u./day) colecalciferol form
Omega 3 oils
B-12 (methylcobolamin) sublingual 5-10 mg/day
These three supplements directly relate to MS. Vitamin D regulates the immune system, the body makes both brain cells and myelin from Omega 3, and methylcobolamin is the form of B-12 that has direct application to the central nervous system. OTHER THAN THESE THREE, NO OTHER SUPPLEMENTS ARE LIKELY TO MAKE A DIFFERENCE IN MS SYMPTOMS OR SEVERITY.
It is thought that OPC "may" have a beneficial effect on the blood brain barrier (and I do take it daily), but so far as I know there is no scientific evidence to bake that up. I believe strongly that plant-based minerals are important building blocks for all cells in our body, and I include them in my supplements every day. A good multiple is also probably a good thing for most people. Most other things like Co-Q-10, etc., just help to keep us healthy. Some of us, depending upon our age, sex, etc., need to add one or two items
I prefer that people spend their dollars on healthy organic produce rather than synthetic supplements. If we eat a proper diet, we rely on the three supplements listed above that directly relate to MS. Please don't be deceived by well-meaning sales people that anything else is going to be a magic elixir for MS. Also remember that whatever the various companies call their supplements (an example is "neutraceuticals," they are still just supplements.
STRESS REDUCTION: Exercise and deep breathing certainly help with stress reduction, but the best stress reduction technique I know of is meditation. Any library will have all kinds of information/help with meditation. There are many avenues to meditation. The important things is that one gets started. In its simplest form one is merely learning to still the mind chatter. And it is in that mental silence that we reach total relaxation. Carried a step further in that silence we many times may have profound experiences.
In the little book I wrote, From MS to Wellness, I listed meditation as one of the healing tools I used. In it I gave some simple ways to begin meditating. If you do not have From MS to Wellness, I make it available in a Word text format for free if you'll just send me an e-mail asking for it. If you would like a bound copy of the book, just send along $3.00 for postage and I'll mail you a copy. Send to Iams House, 139 Inner Circle, Davis CA 95618.
So. What are you waiting for? Whether you need to start or re-start a healthy lifestyle program for yourself, I can't imagine any excuse for putting it off.
My prayers to all of you! Chris