gwa wrote:My experience with steroids was that for the first 10 or so years, during flares, they made me better, although I still had lingering symptoms that never totally cleared up each time.
I have been using oral prednisone 75mg for 2-3 days on a relapse, and it still stops a relapse. Its the only thing that does. My question was more on the trials that have been done where patients are on then 24/7 (lower dose of course) even during remissions.
gwa wrote:The last time I was put on them I had so many side effects that I decided I would never take them again.
I have never had an infusion, only oral prednisone. The only side effects I have had were difficulty sleeping, mild osteoporosis and once i developed a very mild "moon face". Someone asked me if I put on weight, they saw it in my cheeks.
As for the mild osteoporosis,I was given a once weekly treatment of a drug called fosamax which returned me back to normal range. Its a bit of a wonder drug for osteoporosis. Maybe you should look into it. The only side effect I have herd from it is stomach upset, which never bothered me.
gwa wrote:Another thing about taking steroids is that they decline in effectiveness over time and end up not being of much benefit for symptom relief.
Yeah, thats what i understand, but what i dont understand is what