CFS

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CFS

Postby bromley » Mon Jan 22, 2007 1:04 pm

Here's an interesting article about CFS - the experts now say that there is neuro-inflammation, EBV (which causes glandular fever / mono) is the prime suspect, trials are planned (i) using an anti-viral and (ii) using betaferon.

Ian

http://www.timesonline.co.uk/article/0, ... 61,00.html
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Postby CureOrBust » Tue Jan 23, 2007 5:06 am

I dont have it on me but I am CERTAIN I have seen a small study that found treating CFS with one or two antivirals produced positive results. I cant remember now if it has been posted here or on CPn Help. I'll search for it tomorrow. Probably 6 to 12 months ago.
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Postby CureOrBust » Wed Jan 24, 2007 7:19 am

This is the link I was taking about. Its from 25 may 2006.

A Herpes Drug May Make Energy Soar for Chronic Fatigue Syndrome Patients
http://www.immunesupport.com/library/showarticle.cfm?ID=7152&Reviewed=YES

... The London Daily Mail newspaper reported the study results, which were delivered at a scientific conference earlier this month by Professor Jose Montoya, M.D., an infectious disease researcher and Associate Professor at Stanford University. The study took place in California, and involved 12 CFS patients who were given the drug valganciclovir, which targets the human herpes virus (HHV-6). Nine of the 12 patients reported a great improvement in their condition...

...“I was amazed by the results,” Professor Montoya was quoted as saying at the infectious diseases clinic he heads at Stanford University. “Donna was sent to me because high levels of another virus (Epstein Barr) had been detected in her system. I found high levels of HHV-6 virus as well, so I treated her with valganciclovir to bring down her viral load. I'd hoped it might help a bit, but I didn't expect the results to be anything so dramatic. It was pure serendipity.” ...

...“I have treated hundreds of immune compromised patients with the drug, so I am very familiar with it,” stated Professor Montoya in The Daily Mail. “It can have serious side-effects including anemia, so you have to monitor patients very carefully...

...Professor Montoya commented on the possibility that the results were just due to a placebo effect. He told the newspaper “that is unlikely because we saw a worsening of each patient's condition around week three to four of the treatment, probably when infected cells were dying off. After that came the improvement. That is not a pattern you get with placebos. But we don't know yet why the drug makes such a difference.” ...

...Now research is showing that these patients have “a disturbance in their body's natural way of dealing with infection,” Professor Malcolm Hooper, Emeritus Professor of Medicinal Chemistry at the University of Sunderland told The Daily Mail. “Anti-viral drugs such as valganciclovir may be allowing it to re-set itself.” ...
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Postby Chris55 » Wed Jan 24, 2007 7:42 am

Now I find this EXTREMELY interesting! Thank you for sharing.
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Postby Loobie » Wed Jan 24, 2007 9:09 am

I find it very interesting too. I have always had cold sores on my lower lip since I was a kid; maybe two or three times per year. Since I got dx'd not only has the frequency increased dramatically, but I now have a large herpes outbreak (it looks like a cold sore the size of a quarter) that comes out on the back of my thigh and I have had times where that is almost always flared up. It seems like my outbreaks went through the roof at the same time I started showing symptoms of MS.

I will follow this with great interest.

Lew
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Postby Chris55 » Fri Jan 26, 2007 9:31 am

Everytime my daughter gets a cut--even a very small one--it becomes infected and she usually ends up on an antibiotic. Just called me last night with 2 more. Pretty weird to me.
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