It seems that a lot of neuros don't even put their patients through EDSS testing, possibly to avoid making their patients feel "labeled". I imagine some neuros also have the outlook that EDSS isn't essential because there's only so much that can be done and what is going to be is going to be so why document it?gwa wrote:Actually I have never been told by a neuro what my "score" was/is. It is simple to look at the chart and determine where I fit into the scale.
JFH wrote:This makes me so angry! How dare they! It is so so bad.
In keeping with that, this link (from the NMSS) http://www.nationalmssociety.org/MUCS_FSS.asp explains and provides other links which go into more detail how, why and when it's beneficial to know EDSS and additional ways that it is determined.NHE wrote:EDSS is one way to measure and infer treatment efficacy.
Users browsing this forum: harry1