Glad to hear the solumedrol burst is over, but yes, it's a major bummer when you find that you have to hit the ORAL steroids too! I do a solumedrol "burst" every two months in order to keep exacerbations at bay. (Diagnosed Feb06, without a MAJOR flare since I began the bursts in August 06) I hate it... HATE IT. What dose did they put you on for after the infusion?
I got married with a moon face... it was a major bummer to see my photos and feel like the whole day will be remembered as "wow... she really let herself go". However... it was SO much better than having my hubby come down to kiss the bride in a wheelchair! Or have to decorate my cane ("pimp stick") in order to make it match my dress.
After the burst, I do a four week taper from 80mg, to 60, to 40, to 20... then 10, 5 and I continue on 5 as a "maintenance dose" for my Lupus (joint pain). I am forever on steroids... and have been for WAY TOO LONG. However, with smart diet, exercise, Nexium (for my tummy), and the confidence to show everyone my apple-cheeks without hiding... I'm happy to be healthier than I was BEFORE I did the 'roids. What are your docs thinking about for a long-term plan of steroids?
My major side effect with the solumedrol: ROID RAGE! I would get FLAMING mad about stupid stuff (couldn't open a bottle of tylenol and ended up throwing it against a wall and exploding it everywhere... VERY unlike me) I would cry, throw fits... and essentially act like I was 2 years old and not getting my way. I still do this every time I get my burst for about three days. Hubby just lets it run its course, puts a hot pack on my neck, rubs my back and bit... and tells me to go put on my big girl panties and go on with my day.
Keep me posted on your side effects... I am a good ear (eye?) most of the time... except every-two months for about three days. Then run. And hide
"Some women aren't meant to be tamed... we are meant to run free until we find someone just as wild to run with"