I understood that in the US there is a "fast track" system where people with certain conditions can get experimental or non-approved drugs by signing a disclaimer. I don't think it's available here, but it sounds like a good idea.
It's good to meet you too! It's not MY position on the MS spectrum that I'm concerned about, but I am keenly aware that there will be visitors to this site who are newly diagnosed or in the early stages, and the last thing they need to read about is something which might sound like a dire prediction of their future.
Just the opposite is true: it is a fact that, even if no one did ANYTHING about their MS, the chances are that they would never become severely disabled and there are so many new drugs, treatments, breakthroughs in understanding, dietary options and repair strategies coming thick and fast that I think we have every reason to be optimistic. I just thought it was good to see that those of us who drew the short straw had not been forgotten.
Great picture by the way... You look very happy!