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PostPosted: Thu Sep 02, 2004 8:20 pm 
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Joined: Wed Sep 01, 2004 3:00 pm
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Location: Pittsburgh PA
My name is Lexi. I was diagnosed on July 6th. I am a full-time student at Carnegie Mellon University in Pittsburgh Pa. I am 21 years old and my friends think I'm dying. I have recently started Avonex therapy. Feel free to send me a message or an email.
looking forward to making some friends who understand what I'm going through![/b]


Last edited by Lexi on Fri Sep 03, 2004 6:10 am, edited 1 time in total.

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PostPosted: Fri Sep 03, 2004 2:34 am 
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Joined: Mon May 10, 2004 3:00 pm
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Location: UK
Hi Lexi,

Sorry to hear about your diagnosis. It's a tough one and there is absolutely no reason why you should feel happy about it.

I haven't got much time at the moment to give you a fuller reply but I'm very happy for you to send me PM if you need advice or just to talk, but my timezone is a lot different to yours so I may not be around when you are.

Just a quick word of advice - do take your email address off your post otherwise you will be innundate with spam as spammers have programmes that crawl over the net to harvest addresses. I

t is possible to avoid this by writing it as name(nospam)@whatever.com, but personally I still don't think it is a great idea to give out your personal email address. People can PM on this board and this is a lot safer.

Felly


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PostPosted: Fri Sep 03, 2004 6:11 am 
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Hi, Lexi. There is a lady who posts here occasionally who has a daughter who is a full time college student who also has MS. I have a 16 year old son with MS, and I'm slowly finding more young people here and there. I will contact this lady via email and try to get the message to her daughter and see if we can bring the two of you together. It may take a bit, though, they are dealing with the hurricane right now! Just give me time and I will see what I can do!

Meanwhile, you will get lots of support and information right where you are! You've found a great site...

Kim

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PostPosted: Fri Sep 03, 2004 6:15 am 
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I'm sorry, I can never seem to say all I want to say with one post! My son also used Avonex for a year, and he did very well on it as far as tolerating the injections and managing side effects. If you have any questions, I will be more than happy to try to help you.

Tell your friends to get a grip! There is so much hope looming on the horizon for the newly diagnosed, and most people consider themselves lucky to get an early diagnosis because of all the treatments that are coming available. Maybe you could engage your friends in following you to research MS, because most of us have found that knowledge puts the fear right in the back seat!

Take care!

Kim

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