Do I "fit" here ?

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Do I "fit" here ?

Postby bigouies » Mon Apr 23, 2007 7:27 am

Hello...

I am a V.A. Hospital patient. I was dx's as MS/SS sjogren's syndrome.
I have all the symptoms, and have the lesions in the WM. The neurologist fellowship said 'many' ? lesions. They are not treating me with interferon ... yet...

I take pred. mtx, lyrica and paquinil. Many other scripts too for HT, etc,
I also have autoimmune liver disease.

Numbness, burning Pain, eyesight involvement.

So do I fit here?

jangy (bigouies)
sjogren's syndrome, MS, autoimmune liver disease, fibro, hypertension, on and on and on....

I am more than these...I am a survior!
User avatar
bigouies
Newbie
 
Posts: 3
Joined: Tue Apr 17, 2007 3:00 pm
Location: texas

Advertisement

Re: Do I "fit" here ?

Postby Lyon » Mon Apr 23, 2007 12:25 pm

bigouies wrote:So do I fit here?
jangy (bigouies)
Hi Jangy,
Of course you fit in here, although I've never run across anyone with sjogren's syndrome so it might be a learning experience for all of us.

Welcome to the site!
Bob
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Do you?

Postby lyndacarol » Mon Apr 23, 2007 5:13 pm

bigouies--Lyon said it for us all..."Of course you fit here!!!"
User avatar
lyndacarol
Family Elder
 
Posts: 2311
Joined: Thu Dec 22, 2005 4:00 pm

Postby ewizabeth » Mon Apr 23, 2007 8:21 pm

Hello there, and welcome! And yes you fit here! We even allow healthy people in! :wink: :wink: Just kidding!!
Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.
User avatar
ewizabeth
Family Elder
 
Posts: 270
Joined: Fri Jun 25, 2004 3:00 pm
Location: Near Chicago

Postby Arron » Mon Apr 23, 2007 11:51 pm

you are absolutely welcome here!
Disclaimer: Any information you find on this site should not be considered medical advice. All decisions should be made with the consent of your doctor, otherwise you are at your own risk.
User avatar
Arron
Volunteer Moderator
 
Posts: 892
Joined: Sun Feb 01, 2004 4:00 pm
Location: California, USA

Re: Do I "fit" here ?

Postby CureOrBust » Tue Apr 24, 2007 4:06 am

Lyon wrote:Of course you fit in here, although I've never run across anyone with sjogren's syndrome so it might be a learning experience for all of us.
Ten + years ago, it was my first diagnosis.
User avatar
CureOrBust
Family Elder
 
Posts: 2914
Joined: Wed Jul 27, 2005 3:00 pm
Location: Sydney, Australia

Thank you so much

Postby bigouies » Tue Apr 24, 2007 4:19 am

If it wasn't for hubby's support I would go bizurck!

I am going through the, well I really may make sense out of these crazy symtoms. Like my PA in rheumatology says hey, it is not in your head it is in your brain. Thanks to his perseverance (sometimes our only weapon) we got the dx's.

Yes, in 2005, they said I had sjogren's syndrome.... (pronounced SHOW-grins) I thought sure there is not even a disease called that came home looked it up and whooops there it was!

I have been plagued with AI's since 1979. The neurologist thinks I have had MS a long time and that the treatments for the AI's (pred, MTX etc) kept the MS at bay and no one looked for it.

Please do investigate Sjogren's it is a little cared about disease that really effects those that have it. Like fibro there is more too it than doc's care to let it's victims in on.
sjogren's syndrome, MS, autoimmune liver disease, fibro, hypertension, on and on and on....

I am more than these...I am a survior!
User avatar
bigouies
Newbie
 
Posts: 3
Joined: Tue Apr 17, 2007 3:00 pm
Location: texas

Autoimmune Spectrum

Postby Lyon » Tue Apr 24, 2007 2:30 pm

bigouies wrote: Please do investigate Sjogren's it is a little cared about disease that really effects those that have it. Like fibro there is more too it than doc's care to let it's victims in on.
Personally, I've long been convinced that all these "autoimmune" diseases, which have been separately discovered and separately researched and in every way have each been considered a disease in and of itself, in reality is a single "syndrome" which expresses itself differently in different people due to differences in their individual systems.

If there is any good in any of this I think it is that the people who have multiple autoimmune diseases and must feel that their situation is beyond hope are going to be pleased to discover that their situation is much less dire than they think and won't require their waiting for a "cure" for each of these obscure diseases.

Bob
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby REDHAIRANDTEMPER » Thu Apr 26, 2007 12:50 pm

welcome to the group.....

chris
waiting for answers
User avatar
REDHAIRANDTEMPER
Family Elder
 
Posts: 285
Joined: Mon Nov 07, 2005 4:00 pm
Location: wisconsin


Return to General Discussion

Who is online

Users browsing this forum: cherrylane


Contact us | Terms of Service