This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Wed Jun 19, 2013 12:35 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 12 posts ] 
Author Message
 Post subject: Could it be?
PostPosted: Tue May 22, 2007 10:03 am 
Offline
Family Elder
User avatar

Joined: Thu Jan 27, 2005 4:00 pm
Posts: 1148
Location: Northern Ontario, Canada
MacKintosh wrote:In different people, it manifests differently. Sometimes it gets into the brain and becomes MS, sometimes the joints and becomes rheumatoid arthritis, sometimes chronic fatigue syndrome, high blood pressure, etc.

If this is true then all the other research and drugs are just a mistake. All the people that are trying these drugs must really wonder if they are doing the right thing. For someone just starting out they have the neurologist telling them one thing and then in the back of their mind they are thinking could one of these alternative therapies be the answer. You just want to believe in something but what. For me it doesn’t really matter I am done with drugs but I really like to read and see where this is all going, This web-site will be even better in the future. I hope some of the same people that we have all gotten to know are still here so we can really see the results of all this stuff. I am not saying one way or another whats right and whats wrong but this is huge if it turns out that abx is the the right path. We are in two different spectrums of treatment here, antibiotics vs major immune system altering medication

Anecdote wrote:Robbie, this is going to be as big a change in the status quo as when Marshall and Warren proved that stomach ulcers were caused by helico bacter pylori:

_________________
Had ms for over 19 years now.


Last edited by robbie on Tue May 22, 2007 12:42 pm, edited 6 times in total.

Top
 Profile  
 
 Post subject:
PostPosted: Tue May 22, 2007 10:20 am 
Offline
Family Elder
User avatar

Joined: Sun Oct 09, 2005 3:00 pm
Posts: 428
Location: Missouri, USA
Robbie,

Where/ who did the quotes come from?

Brock


Top
 Profile  
 
 Post subject:
PostPosted: Tue May 22, 2007 12:39 pm 
Offline
Family Elder
User avatar

Joined: Thu Jan 27, 2005 4:00 pm
Posts: 1148
Location: Northern Ontario, Canada
Viper 498, This might be something you could try. Sounds pretty good, i brought it over from the antibiotics forum, thought more people would see it here..

_________________
Had ms for over 19 years now.


Top
 Profile  
 
 Post subject:
PostPosted: Tue May 22, 2007 12:58 pm 
Offline
Family Elder
User avatar

Joined: Sun Oct 09, 2005 3:00 pm
Posts: 428
Location: Missouri, USA
Due to my relapse that I am currently experiencing, I went to the Neuro today. Just got back. I asked the doctors Nurse (she is an MSCN), who is the one who saw me today, if she would prescribe Minocycline for me, then I gladly handed her all of my research on it. She said she doesn't have a good reason why she will not prescribe, so she will call me by Monday with the prescription. She wanted to do a bit of research on her own before signing off. She said that she is open to it and that the safety profile is there, and the cost to benefit would excellent if it worked even a little. So I should be starting Minocycline by next week!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

She also gave me a script for Prednisone for my current relapse. Lets hope the damage isn't permanent.

This is great to me. At least I get to try something that I think might work, or at least work better than Rebif. The deal is I have to take rebif and mino... She won't endorse the replacement. I told her "Deal".

Brock


Top
 Profile  
 
 Post subject:
PostPosted: Tue May 22, 2007 1:09 pm 
Offline
Family Elder
User avatar

Joined: Thu Jan 27, 2005 4:00 pm
Posts: 1148
Location: Northern Ontario, Canada
Sounds good Brock, what made you decide to go with mino instead of going with the full abx regime or is it the same? Anyway i think you will get back to feeling normal soon, keep us posted on how you feel.

_________________
Had ms for over 19 years now.


Top
 Profile  
 
 Post subject:
PostPosted: Tue May 22, 2007 2:09 pm 
Offline
Family Elder
User avatar

Joined: Sun Oct 09, 2005 3:00 pm
Posts: 428
Location: Missouri, USA
Well I guess its basically because I have been following Mino since I was diagnosed, and the new study that came out of canada lookeed good so I think its worth at least trying that. I don't want to get to crazy with the ABX, yet.

Brock


Top
 Profile  
 
 Post subject:
PostPosted: Tue May 22, 2007 6:13 pm 
Offline
Family Elder
User avatar

Joined: Mon May 24, 2004 3:00 pm
Posts: 300
GREAT for you Robbie! I, too, have read lots of very promising info about Mino. If you question the Rebif & Mino combinatiion, you can always stop the Rebif. That is what my daughter did when she started taking her supplements and began to experience significant improvements. Then, to stop the automatic shipments, she told her MS nurse that she was going to get pregnant and did not want to be on Avonex. Don't guess you can use that same excuse?!?!?

Please keep us posted. As I have said--over and over--if it does no harm and it just might help and you don't have to mortgage your home, soul and body...God, why not!!!

And I wish you the VERY BEST--truly! One thing my daughter did that you might consider is she kept a daily diary. Her improvements were very slow and subtle. By keeping a journal she was able to see the improvements, albeit small. Until the day she was petting her cat and realized she felt her fur--in her left hand that had been paralyzed for 2 years! That was a "biggie"!

God bless! Chris


Top
 Profile  
 
 Post subject:
PostPosted: Tue May 22, 2007 6:15 pm 
Offline
Family Elder
User avatar

Joined: Mon May 24, 2004 3:00 pm
Posts: 300
Uhhhhh--one correction--"Brock" not "Robbie"--OOPS!


Top
 Profile  
 
 Post subject:
PostPosted: Wed May 23, 2007 3:14 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2735
Location: Sydney, Australia
robbie wrote:
what made you decide to go with mino instead of going with the full abx regime or is it the same?
Taking Mino is very different to the ABX's regimine. Mino is taken alone because of its anti-inflamatory properties (from what I understand, they are currently working on a non anti-bacterial version of Mino), while the ABX's are taken specifically to kill bacteria.


Top
 Profile  
 
 Post subject:
PostPosted: Wed May 23, 2007 11:31 am 
Offline
Getting to Know You...
User avatar

Joined: Mon Oct 16, 2006 3:00 pm
Posts: 22
Location: Georgia
Chris55, What kind of supplements (you daughter is using) are you referring to. How long has she used them and with what results? I too have stopped with all treatments and have just started a nutritional supplement regime. I am very interested in any good news. Thanks


Top
 Profile  
 
 Post subject:
PostPosted: Wed May 23, 2007 11:54 am 
Offline
Family Elder

Joined: Sun Aug 27, 2006 3:00 pm
Posts: 775
Location: Ireland
What is the dosage/regime for Mino?

It sounds interesting, I might ask my doc for a sript............. :wink:


Top
 Profile  
 
 Post subject:
PostPosted: Wed May 23, 2007 12:09 pm 
Offline
Family Elder
User avatar

Joined: Sun Oct 09, 2005 3:00 pm
Posts: 428
Location: Missouri, USA
Quote:
100 mg twice daily
start at just bedtime for one week then add the morning dose. If also on interferon I suggest that you liver enzymes be followed initially



This is what has been recommended to me by a very reliable source...

Brock


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 12 posts ] 

All times are UTC - 8 hours [ DST ]


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum