This Is MS Multiple Sclerosis Community: Knowledge & Support

This post is for all of you who were so kind and supportive of both my daughter, Suzy, and me-- Jimmylegs, mormiles, lyndacarol, moonwolf, sh8un, wino, anecdote (Sarah), etc. I have an exciting update! (For those who were not so supportive, you will probably want to skip this post—no more fights, please!)

I have sent private emails to most of you, I believe, with the results of Suzy’s visit to her MS specialist this past February. We now have a new and exciting “milestone”!

A bit of background…after graduating from college, Suzy opened a dance school. It was very successful. She was diagnosed with MS going into her 3rd year. It was, of course, devastating--mentally, physically & emotionally. Over half of her students quit (from over 300 to about 120). Even her then-neurologist took both of his children out of her school, not because of her MS but because her mother had the audacity to demand a second opinion from MUSC (medical univ. here in SC).

In spite of this, she trudged on, never letting anyone know how heartbreaking this all was and refusing to give up her school. Her older sister, who has a degree in dance education, quit her public school job and went in with her sister. I, of course, continue to do all the books and administrative duties.

Suzy could no longer physically dance so we hired extra teachers to “demonstrate”. When the fatigue was so bad she could not stand, these teachers taught! At the time of her first solumedrol treatment, she weighed 104 lbs. (5’ 2”). After—180 pounds. She has managed to lose 20 pounds over this last year.

Last weekend was our Season 5 recital—one show on Friday, one on Sat. afternoon and one on Saturday night. My beautiful daughter—all 164 pounds of her!—performed a solo in every performance! She danced!!! She did 3 Fouettes (turns) followed wth a triple Pirouette! She did these turns on her “bad” leg!!! And I mean she “danced”!!! Everything she ever did before!

During the senior farewell speech (12 leaving!), Suzy thanked the parents/students who chose to support her program and her when so many others didn’t. She was sobbing—as were all of us!

We still live like the proverbial alcoholic—one day at a time—never knowing what will be around the next bend. But for now, we are ALL rejoicing!

I thank all of you again for your kindness…you will never know how much it has meant to me! Chris

I'm so happy for all of you, specially for your brave daughter. I understand you very well, I'm a mother too, and I know how proud you must feel in those moments. And you are right, the most important is to live every good moment, and tomorrow could be brighter who knows... We all hope so!

Chris55,

How was she able to do this? What sort of treatment has she been on? Do you attribute her ability now to the treatment that she has been on?

Brock

I'm glad to hear the good news Chris!
Bob

Viper--I attribute ALL of her healing to the supplement treatment she has been on! As they say, the "proof is in the pudding". (Don't know if you remember, but months ago I was jumped on with both feet by naysayers on this site. That is fine to doubt, but please no arguments! Like Rodney King said: We all need to get along, especially those of us who have touched by this horrid disease!)

I have intentionally not posted her last visit to her MS specilist (Feb. of this year) because I don't want to argue. But here it is:

No new lesions
No active lesions
No brain shrinkage
All old lesions shrinking
Her MS doctor will no longer be giving her any MS medications. She will see him once instead of twice a year. He said: "This just happens sometimes. We have no idea why. The MS just stops!" (And no, she did not tell him about her alternative treatment. She does not want to lose her MS doctor.) He continued that it is rare that he gets to just kick back and chat with a patient. Then (and I think this was so cute!) he gave her a copy of her before and after MRIs!

Chriss 55 - Thanks for sharing your daughters inspiring news with the group! I am very happy for her and for your family!

I too am heavily into supplements and complementary medicine and would be very interested in bumping your daughter's therapy against my husbands. I tried searching for a post in which you outlined the plan but haven't been able to sniff it out.

Would you be so kind as to steer those of us who are interested to that post?

Thanks and again - AWESOME NEWS!

Daisy

Hey Daisy and Brock: Sorry for taking so long to get back to you! I have been trying to catch up at work after being off for the recital.

Okay, here is the website: http://www.vonner.com/vonner/

This is what my daughter did: She started with the Target Pack (took about 3 months.) I believe the cost is around $300. She also ordered Neurvox (nerve damage repair) which she has remained on throughout the course of her supplement regimen. Once she completed the target pack, she sent in her urine sample. This test runs about $189 I think(?). There is also a cost to mail it so that it gets there within a specified time (must be "fresh"). Suzy was diagnosed with a strep bac. infection and given Streptocept. I believe this lasted 3 months but could be mistaken. I believe the cost for the Streptocept is about $60. Then when you complete the course, you wait 4 days (I think?) and then send in another sample. (If you do this within a specified amount of time, the cost of the second test reduced by 50%.) Suzy has continued this regimen since last June. Each time she sends in her sample, she still has the strep infection. (She knows immediately within the 4 day break--she invariably has severe upper respiratory problems right after coming off the Streprocept.) She does experience the Herx reaction. (If you don't know what this is, let me know and I will explain.) She will continue doing this until she gets a clean bill of health. (As I said--she only decided to try this because she knows a young man with incurable cancer, 6 months to live, who did it and is still cancer-free today 3 1/2 years later. His regimen was 12 weeks and that is all he ever took.)

If you are hesitant to jump into this with both feet...I would suggest you try the Neurvox and maybe the Streptocept. The contact information is:

Vonner Health Services
500 Spring Street
Suite 104
Gainesville, GA 30501
770-654-9400

Email :vonnersupport@gmail.com

My daughter called them and talked to them for over 3 hours before she ordered anything! She stuck to the program rigidly, doing exactly what was recommended. Again, she kept a journal. Her improvements were very subtle and the journal helped her to see the improvements. Today, of course, that isn't a problem! Her MS was also considered quite mild (not to me!). Her lesions were HUGE and glowing when she started. Now I can't even find them on the MRIs.

Any questions, please let me know! Good luck to ALL of you--Chris

I will bite my tongue here; glad your daughter is feeling better Chris.

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Had ms for over 19 years now.

Robbie--no need to bite your tongue at all! As I have said...people on this site are intelligent adults who will always have the option to choose what is best for them! No one has to invest anything in my daughter's program at all..does not change my life--or hers--even one iota!

I am just sharing information---like everyone on this site. If you disagree then no one says you have to participate.

I do NOT want anger or fights! Just please allow ME the same opportunites everyone receives at this site...to share info I consider valuable and important!

Peace my friend--Chris

If it makes your daughter feel better than thats all that matters..

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Had ms for over 19 years now.

If it makes her feel better?? What a strange comment. She actually feels quite great.

This information clearly does not benefit you Robbie and that's cool. I was just providing it to the 2 posters who had requested it. In the future, I will PM them. I do not mean to upset anyone, especially someone who has to live with this hideous disease every day.

I wish the very best for you Robbie. This is not an easy journey for you and, especially those who love you! Sometimes I think our journey can be even more difficult in a different way. If you have a child then you can understand I am sure. Your friend, Chris

I think the PM option on this site is bullshit, just say what ever u want and let all of us see. I said better i meant to say great!

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Had ms for over 19 years now.

Well...allrrriiigghhtty then!

Chris that's fabulous news about your daughter, what determination she has. I hope her remission continues and continues..............

cograts on the things working for your daughter and stuff there chris.... good luck with everything...just to let you know that letter you had posted on here a long time ago i still have it i put it on my frig so my friends see it...i hope you remember the post i want to print it off again just cant find it on here...lol....memory loss for me..go figure..but congrats for her feeling better and all..good luck


chris

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waiting for answers