This Is MS Multiple Sclerosis Community: Knowledge & Support

I've just received my magazine from the New Pathways publishers which is for MSers and they have included an article about the esperanza neuropeptide sublingual spray which costs a staggering £5,450. Does anyone know anything about this stuff? It looks a bit snake oily to me but just wondering if anyone had heard anything good about it.

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3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,

Hi gibbledygook,
I withhold judgement but here is a little information which seems independant of the perpetrators.....I mean salespeople http://www.mstrust.org.uk/publications/ ... erenza.jsp
Bob

I get e-mails from these people and I added them to my "junk and unnapproved" folder. They have a website that I would forward to you, but after I visited it once, I didn't commit it to memory. They have a clinic, or something like it, in the Bahamas. The webpage contained 100% personal testimonials. That's at least as far as I could tell.

I'm like Bob in that I would never want to inhibit anyone from checking into somthing for themselves, but since I could not discover anything about the mechanism of the drug, I personally think it's a scam. My $0.02 worth. I have no idea how I got on their mailing list, but they don't send them as often anymore. Maybe I timed out!

well, that's rather what I thought. The website is terrible. Reminds me of a stem cell scam company with plenty of anecdotal reports but no hard science. Oh well.

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3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,

Hi gibbledygook,
About a month ago my wife told me that her co-worker's 26 year old sister in law (with 3 young children) had been diagnosed with terminal cancer and was thinking of going to a clinic in Mexico, gave me the website and told me to investigate.

It was a nice website, said all the right things, used highly technical and pertinent terms but as you mentioned, no hard science. They offered hope but no promises. I told my wife to tell the lady that it was a waste of money but she was desperate and went to the clinic.

Her funeral was Tuesday and not only did she leave her husband and small children at a young age but the clinic visit cost $48,000

The desperation of the situation doesn't change the fact that, if it seems too good to be true, it likely is.

I'm glad you didn't waste your money

Bob

A good few years ago, there was a lot of very negative publicity about the use of cobra venom as a treatment for MS and seem to recall one charity whose name I cannot remember actually funding some MS trials, which proved nothing.

I will see what I can find