This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi,

I recently found this article in MSRC website

http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=1829&CFID=3680312&CFTOKEN=72765621

Also our neurologist had suggested that Botox is a very good treatment for people with severe Spasticity & said that one dosage would be enough for a patient to be free of Spasticity for up to 6 months.

I would like to know the experience of others in case if they had used Botox

Thanks in Advance,
Gopi

Gopi,



My wife (who has MS) and I looked into Botox about 6 years ago after Marg broke her leg and ended up with severe spasms for several months. We spoke to a therapist at the March of Dimes who worked with both adults and children and she saw the results of Botox from several children who had used it for their spasticity due to various neurological diseases.

At first, it worked well but she told us that in every case the effect of the drug and the length it lasted lessened over time. Some patients were able to use it up to 5 years before it totally lost its effect while others got only about one year's use.

What concerned us the most was the fact that the spasticity returned to the kids, often worse than it was in the first place.

I'm thinking that in the last 6 years they may have been able to refine the use and dosage for patients but that is something you can certainly ask about.

Good luck.

Harry

I tried it for 6 months after concluding that oral Baclofen was not working for my spasticity. I did not see any improvement. I now have a Baclofen pump. I do not discount Botox. My doc said many of his patients have improved. I suggest you try it and see if it helps.