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Anecdote
PostPosted: Sun Sep 26, 2004 5:11 am 
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Location: Bedfordshire UK
Art posted this in the "Pulling it all Together" thread.

Quote:
Vince Macaluso in Flushing NY is a neurologist with MS. He's in midst of setting up a private practice so doesn't have contact info at the moment, but I can forward something to him if you want. Send to art-at-bostoncure-dot-org


Sarah
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HarryZ
PostPosted: Sun Sep 26, 2004 6:23 am 
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Sarah,

It would be very interesting to see if Vince follows the standard course for MS treatment on himself or if he looks to other medications such as LDN, etc.

Harry
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Anecdote
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PostPosted: Sun Sep 26, 2004 3:07 pm 
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Harry,
Taken from the same thread!

Says Art: "Vince is taking Avonex, and speaks at numerous Biogen events. (!!)
Quote:
Since all the currently approved meds are about 30% effective, any benefit of one of the other is measured in a few percent which is unlikely to have a noticable effect in an individual.
Pick the one that fits your lifestyle the best, monitor your progress, and if you don't respond - change to another."

Whether he thinks in the broader spectrum re: anyone else, who knows. Hopefully he might.

I'm just glad I am married to a medical microbiologist, who took matters into his own hands.

Sarah


Last edited by Anecdote on Mon Sep 27, 2004 2:36 am, edited 1 time in total.

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Xenova
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PostPosted: Sun Sep 26, 2004 9:53 pm 
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I can tell you, he's not the only neurologist with ms. I've heard of at least two in my state. One of these is still not public about it.

There is a video interview with Macaluso on the web somewhere. Here is an interview transcript.
http://www.healthology.com/webcast_transcript.asp?f=m_sclerosis&c=ms_physician&spg=NWL&b=healthology
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adjanimals
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PostPosted: Mon Sep 27, 2004 8:06 am 
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I wish mine had it, then the SOB would know what it's like.
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