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Neurologist with MS in the US

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Anecdote

Post subject: Neurologist with MS in the US

Posted: Sun Sep 26, 2004 5:11 am

Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2037
Location: Bedfordshire UK

Art posted this in the "Pulling it all Together" thread.

Quote:

Vince Macaluso in Flushing NY is a neurologist with MS. He's in midst of setting up a private practice so doesn't have contact info at the moment, but I can forward something to him if you want. Send to art-at-bostoncure-dot-org

Sarah

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HarryZ

Post subject: Re: Neurologist with MS in the US

Posted: Sun Sep 26, 2004 6:23 am

Family Elder

Joined: Tue May 25, 2004 3:00 pm
Posts: 2127
Location: London, ON, Canada

Sarah,

It would be very interesting to see if Vince follows the standard course for MS treatment on himself or if he looks to other medications such as LDN, etc.

Harry

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Anecdote

Post subject:

Posted: Sun Sep 26, 2004 3:07 pm

Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2037
Location: Bedfordshire UK

Harry,
Taken from the same thread!

Says Art: "Vince is taking Avonex, and speaks at numerous Biogen events. (!!)

Quote:

Since all the currently approved meds are about 30% effective, any benefit of one of the other is measured in a few percent which is unlikely to have a noticable effect in an individual.

Pick the one that fits your lifestyle the best, monitor your progress, and if you don't respond - change to another."

Whether he thinks in the broader spectrum re: anyone else, who knows. Hopefully he might.

I'm just glad I am married to a medical microbiologist, who took matters into his own hands.

Sarah

Last edited by Anecdote on Mon Sep 27, 2004 2:36 am, edited 1 time in total.

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Xenova

Post subject:

Posted: Sun Sep 26, 2004 9:53 pm

Family Member

Joined: Thu May 20, 2004 3:00 pm
Posts: 71
Location: Louisiana, USA

I can tell you, he's not the only neurologist with ms. I've heard of at least two in my state. One of these is still not public about it.

There is a video interview with Macaluso on the web somewhere. Here is an interview transcript.
http://www.healthology.com/webcast_transcript.asp?f=m_sclerosis&c=ms_physician&spg=NWL&b=healthology

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adjanimals

Post subject:

Posted: Mon Sep 27, 2004 8:06 am

Family Member

Joined: Sat Jul 10, 2004 3:00 pm
Posts: 93
Location: Minnesota, USA

I wish mine had it, then the SOB would know what it's like.

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Board index » Multiple Sclerosis » General Discussion

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