This Is MS Multiple Sclerosis Community: Knowledge & Support

I was diagnosed with MS, and recently diagnosed as having Lyme disease (positive western blot).

Is anyone being treated with antibiotics, IV or oral treatments for Lyme and/or MS?

And also if you are being treated with antibiotics, which doctor do you have - Neurologist, Lyme Doctor, General Practitioner?

Also, is your treatment covered by your Insurance?

Please let me know and thanks for your help,

Rob

Rob--my daughter, whom I have written about on this site many times, is taking a natural supplement treatment for a bacterial infection (as opposed to MS meds.) So far, she has done really well.

There is an organization headed up by "real" doctors who believe in LD and the chronic, long-term effects. I no longer have the name, but if you search "Lyme Disease organizations" it will be there. Anyway, they do have a section that lists what are termed Lyme Literate Doctors. I don't know what part of the country you live in but you should be able to find one. Also, I believe almost all states have a LD organization. If we have one here in South Carolina then I KNOW they have to be everywhere! (We are accused of being a little behind the times here in the deep south!) Anyway, they have wonderfully valuable information.

Going to a "conventional" doctor may not help. They only believe in 6 weeks of antibiotics, max. I really like the "natural" approach my daughter is taking as it is less severe and of course has zero negative side effects.

I wish you the VERY BEST!!!

Hi Chris55,

I do see a Lyme Literate Doctor here in Michigan who diagnosed me with Lyme due to a positive western blot test.

I am just starting IV Rocephin treatment for my Lyme Disease per this doctor.

What is the natural supplement treatment your daughter is taking if dont mind me asking.

I really like the natural approach and also could be good to take during antibiotic treatment and after as I am thinking of my situation now.

Let me know you thoughts

I too wish your daughter the very best.

Thanks,

Rob

There are some people (inculding myself) who treat their MS using antibiotics.

If you are interested you will find plenty of information at the "Antibiotics Forum" and the "Regimes Forum".

Also the site "http://www.CPn Help.org/" might be relevant for you.

--Frank

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Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.

click the search button above.

do a search for posts by: Anecdote

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My Starting Point
Understanding MS 101: Doctor Talk and People Talk<br /><br />

Ha, Anecdote here, in the midst of sorting out a big computer crash. You will find me both in the Regimens section and Antibiotics, along with many other people. I don't have lyme but I was treating my progressive MS with abx, finished last June. I was being treated by my husband who is a medical microbiologist who has written papers with Charles Stratton, the professor in microbiology at Vanderbilt. Must dash, loads to do before I finish.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Rob--just saw your posting this morning. I have PM'd you--check your mail and let me know if there is any other information you would like from moi! C.