Does anyone read these?!?!?

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Does anyone read these?!?!?

Postby conandcait » Tue Oct 30, 2007 8:38 am

I posted on the REBIF specific message board literally 100 years ago and no one posted back. I feel kind of like if a tree falls down in the forest and no one is there to hear it does it make a sound when it falls?!?! Yes, that's right I'm philosophical too!!
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Postby gwa » Tue Oct 30, 2007 10:44 am

The lack of response may indicate that no one at this site is on REBIF and therefore there is little interest.

There are a lot of posts for the therapies that are being used by MS'ers here.

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Postby conandcait » Tue Oct 30, 2007 2:02 pm

Wow!! I can't believe it. I guess there are so many other people on Rebif on the other MS sit, Patients like me that I just figured there must be people on this site on Rebif also. Maybe smaller community=smaller rebif numbers, right?!?! Thanks for the reply, anyway!
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Postby Lyon » Tue Oct 30, 2007 2:39 pm

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Postby conandcait » Tue Oct 30, 2007 2:42 pm

Oh, crap USED to be on REBIF?!?!?! I am an idiot, crap,crap,crap (excuse my language) Man!! Now I get it!!
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Postby Lyon » Tue Oct 30, 2007 3:07 pm

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Postby conandcait » Tue Oct 30, 2007 3:17 pm

Thanks Bob, I guess I will just stick to the general discussion thing then. It seems to me that a good majority of people here live out of the country- would you say that's right?
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Postby Lyon » Tue Oct 30, 2007 3:31 pm

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Postby Grumpster » Tue Oct 30, 2007 3:59 pm

Kelli, I am on that REBIF CRAP. It is pretty bad I believe, but about the same as Betaseron I was on a few years. I agree that the general forum thread is viewed and responded to most. I hope you find something that works for you. I ofter wonder if the Feel Like Crap (FLC) symptoms I have constantly are REBIF or MS.

Lyon, that sh-t is too funny. Keep it up and you will be a politician.

Excuse my language. I am particularly miscievous today.
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Postby Lyon » Tue Oct 30, 2007 4:12 pm

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Postby gwa » Tue Oct 30, 2007 4:29 pm

Lyon,

Maybe you could find some limping mice and use it on them.

"It just seemed such a waste of money. "

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Postby Lyon » Tue Oct 30, 2007 4:37 pm

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Postby conandcait » Tue Oct 30, 2007 4:46 pm

Bob, You said your wife got the call to go back on it, but then went to the trial anyway? Is there a certain reason? And oh yeah, I don't care anymore about my other question---ehat was it again? :wink: My husband jokingly said sell it on ebay (knowing full well you can't ) and the Serono nurse told me to take it to my neuro who will give it to someone w/out ins who can use it. I don't know that I would take it from someone else's house and use it. BTW, my 6 year old son just told me he's scared of me- yelling at him- to do his homework, do his nebulizer, finish his homework. Is it the Ritalin? I am starting to think so, cause now I see the highs and lows really bad!! Kelli
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Postby Lyon » Tue Oct 30, 2007 5:14 pm

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Postby conandcait » Tue Oct 30, 2007 5:24 pm

I got the info for the oral trials ( 4 of them) Fingolimod, teriflunomide (HMR 1726D), CDP 323, and BG000012- have you all looked into the orals? I got the heebie jeebies after my daughter was born (youngest) . Thank goodness I believe in God, b/c I started to get a real death anxiety that I never had before!!
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