This Is MS Multiple Sclerosis Community: Knowledge & Support

I posted on the REBIF specific message board literally 100 years ago and no one posted back. I feel kind of like if a tree falls down in the forest and no one is there to hear it does it make a sound when it falls?!?! Yes, that's right I'm philosophical too!!
Kelli

The lack of response may indicate that no one at this site is on REBIF and therefore there is little interest.

There are a lot of posts for the therapies that are being used by MS'ers here.

gwa

Wow!! I can't believe it. I guess there are so many other people on Rebif on the other MS sit, Patients like me that I just figured there must be people on this site on Rebif also. Maybe smaller community=smaller rebif numbers, right?!?! Thanks for the reply, anyway!
Kelli

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Oh, crap USED to be on REBIF?!?!?! I am an idiot, crap,crap,crap (excuse my language) Man!! Now I get it!!
Kelli

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Thanks Bob, I guess I will just stick to the general discussion thing then. It seems to me that a good majority of people here live out of the country- would you say that's right?
Kelli

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Kelli, I am on that REBIF CRAP. It is pretty bad I believe, but about the same as Betaseron I was on a few years. I agree that the general forum thread is viewed and responded to most. I hope you find something that works for you. I ofter wonder if the Feel Like Crap (FLC) symptoms I have constantly are REBIF or MS.

Lyon, that sh-t is too funny. Keep it up and you will be a politician.

Excuse my language. I am particularly miscievous today.
G

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Lyon,

Maybe you could find some limping mice and use it on them.

"It just seemed such a waste of money. "

gwa

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Bob, You said your wife got the call to go back on it, but then went to the trial anyway? Is there a certain reason? And oh yeah, I don't care anymore about my other question---ehat was it again? My husband jokingly said sell it on ebay (knowing full well you can't ) and the Serono nurse told me to take it to my neuro who will give it to someone w/out ins who can use it. I don't know that I would take it from someone else's house and use it. BTW, my 6 year old son just told me he's scared of me- yelling at him- to do his homework, do his nebulizer, finish his homework. Is it the Ritalin? I am starting to think so, cause now I see the highs and lows really bad!! Kelli

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I got the info for the oral trials ( 4 of them) Fingolimod, teriflunomide (HMR 1726D), CDP 323, and BG000012- have you all looked into the orals? I got the heebie jeebies after my daughter was born (youngest) . Thank goodness I believe in God, b/c I started to get a real death anxiety that I never had before!!
Kelli