Hi Robbie, Believe it or not, I laughed when I read your comments. Alot of us are walking around with multiple chronic infections (including me and I don't have MS). To answer your questions...Steve is still working every day, but he has a tough time making it through the afternoons much of the time. He should be using a cane, but he won't, because he's afraid he will be perceived as incapable in his workplace. He's very paranoid about losing his job. Steve has cognitive dysfunction problems and performs low level work at an electronics facility similar to one where he was once the general manager. If he were less affable and well respected with a long history in his field, he probably would have lost his job by now. He has bladder control issues and uses PGE for those intimate moments. Steve is 54, but his first bonafide MS symptoms started in his early 20s. The progression was very slow until about 4 years ago. All those "slow" years he just thought he was a clumsy guy with lots of small niggling problems that were just getting worse as he aged. His diagnosis was in January '05.
This is his treatment history and current status:
March '05 through March '06, injected Rebif.
April '06, four months before
starting the CAP, some incidental imaging revealed several mystery lesions in Steve's internal organs. Since then they've been "watched" with repeated imaging every 6 months.
July '06, used oil of oregano for 2 weeks, but had to discontinue because the fungal die-off reactions were too severe. This was tried because various symptoms pointed to intestinal Candidiasis within this time-frame and, basically, symptoms throughout his entire life indicated chronic Candidiasis.
August '06, took fluconazole for several days (after steroid injection), then started the CAP.
May '07, after several months of improvement on the CAP, Steve's condition started slipping. Since then, he has had more courses of fluconazole, Vfend, Nystatin, and various antifungal supplements. He consistently improves rapidly for several days on these antifungal meds, only to slip down toward the end of the courses. During those "up" times, it's apparent that his CAP improvements are still in place. Steve's doctor now believes he has a resistant strain of Candida, that the infection has gone systemic, and that those mystery lesions in his internal organs are fungal abcesses.
Currently, we are making arrangements with a doctor who is geographically closer to run some confirming tests and hopefully to administer IV antifungal treatments for several weeks. From our understanding, when Candidiasis is this bad and resistant, that's what it takes to lick it.
To meet us visually, please go to : http://www.CPn Help.org/coming_out
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."