I certainly don't want to encourage the negativity, but can you blame his sarcasm? He has had much taken from him over the years, and nothing returned. Its always "5 more years", "its just around the corner". I kind of feel the same, and this disease has only been a part of my life for a couple of years.
I could never blame robbie or anyone with MS for their doubt. One "good" thing about being an old codger is that I've been around for a good many years of the "hopeful new discoveries" in the world of autoimmunes and it wasn't lost on me that they invariably were either never heard of again, or in the best case it was later announced that they were failures. Although not affected on the personal level as someone with MS, they are all filed away in the dark cavern I call a mind.
There is no doubt that stopping the disease process "in it's tracks" doesn't hold the same reason for optimism for someone with a higher EDSS, like robbie, but I hope that even in robbie's situation, stopping progression of disability would be considered a favorable development.
My buddy Chris55 wrote:
This post, I thought, was all about alternative options and whether or not to take the leap.
I won't lie, in the strictest sense Professor Von robbie was only asking whether anyone on conventional treatment had ever questioned their decision.....questioned if maybe their outcome might have been more favorable if they had gone with an alternative treatment.
You've got to admit that the obvious question that raises is "out of all those alternative treatments with testimonials but without documentation, what sensible method might a newbie use to choose between them or, for that matter to choose if ANY of them are right for her/him?"
My only point to this thread is that if it DOES NO HARM (and this is so very important!) and if it does not cause you to mortgage your home, what have any of you got to lose?
Although I'll never agree that Frankenberry, or whatever that crap was, but among the "respectable" alternative treatments, I agree to what you're saying. Where our opinions seem to differ it's in respect to the fact that it really seems that you feel there are no boundaries to this and I (and others) feel duty bound to warn others about the shamelessly blatant, profit driven scams.
If you can somehow find a way to drag yourself out of the dumps you'll probably feel somewhat better even if it's only in your head and not for real.
I don't personally have MS, so I can't say, but that certainly seems like wisdom beyond your years!