EBV/MS relationship..is there or isn't there?

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EBV/MS relationship..is there or isn't there?

Postby Lyon » Fri Dec 07, 2007 7:15 pm

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Re: EBV/MS relationship..is there or isn't there?

Postby CureOrBust » Fri Dec 07, 2007 10:18 pm

Lyon wrote:...and the next (abstract included) finds no link.
Eur J Neurol. 2007 Nov 27 wrote: ... Our findings suggest that reactivation of latent EBV infection does not play a significant role for exacerbations in RRMS...

I think you need to be clear that the study only suggests that there is no link between MS exacerbations and reactivation of EBV. It makes NO claim or denial as to weather EBV kicked the whole process off to begin with.
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Postby Lyon » Fri Dec 07, 2007 10:27 pm

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Postby sojourner » Sat Dec 08, 2007 7:27 am

Well then, why not get even more confused!

Here's a link to an article describing a study that found this:

"Herpes infection may be symbiotic, help beat back some bacteria"


http://mednews.wustl.edu/news/page/normal/9515.html
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Postby SarahLonglands » Sat Dec 08, 2007 8:01 am

An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby Lyon » Sat Dec 08, 2007 11:52 am

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Postby bromley » Sat Dec 08, 2007 12:21 pm

Bob,

I love the way this thread was about EBV and the abx brigade have to put their oar in. We have an abx thread and the regimens thread is pretty much dominated by those on abx. As this thread is about EBV I have the following to contribute:

One of my neuros Professor Giovannoni should be reporting the outcome of his work in EBV is May 2008. See link below.

http://www.mssociety.org.uk/go.rm?id=18366:1

The recent finding from Dr Aloisi found EBV in 22 out of 23 MS patients - EBV found in the brain tissue. Here is a commentary of Dr Aloisi's research from the Australian MS society.

http://www.msaustralia.org.au/msra/docu ... _paper.pdf

Added to this work must be the work on childhood MS and EBV infection (Dr Banwell in Canada).

So there is a good amount of evidence and hopefully there will be more in the near future.

The discovery of EBV in MS brain tissue in over 95% of the cases examined will need to be confirmed elsewhere but looks strong evidence to me. Professor Giovannoni has invited me to his inaugral lecture in mid-Jan and I hope he will cover something about EBV and MS. I'll report back.

I would be more than happy for CPn to be identified as the cause / trigger, but the evidence to date is thin - I've seen no research showing CPn in brain tissue samples or any analysis of childhood MS with CPn. Until this sort of research is undertaken we are relying on self-reporting of impressive results using abx. My improvements with Campath are based on a blinded neuro undertaking an EDSS assessment every 3 months. I was 4 before the treatment and am now 2 - not my assessment but by a neuro blinded to the study.

We need to be careful that those new to this site aren't swayed by self-reporting of those who have seen improvements on abx when those who haven't seen any do not report. And the constant posting of the same abx material does not make it any more credible / convincing.

Ian
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Postby Lyon » Sat Dec 08, 2007 12:27 pm

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Postby bromley » Sat Dec 08, 2007 12:51 pm

Bob,

I see that the Australian MS society is also funding research looking at MS and EBV.

http://www.msaustralia.org.au/msra/docu ... 122008.pdf

Ian


Given that EBV infects B cells - perhaps this is why Rituximab which depletes B cells is looking promising (see presentation by Dr Tim Vollmer).
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Postby SarahLonglands » Sat Dec 08, 2007 1:51 pm

I love the way this thread was about EBV and the abx brigade have to put their oar in.

Bromley, well, you can talk - just look at the way you pushed your nose into the antibiotics forum yesterday: http://www.thisisms.com/ftopict-4819.html

We certainly need to be careful that people aren't swayed by self-reporting of the "abx brigade" or anyone else for that matter. We also need to be careful that people aren't swayed by misrepresenting facts.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby Lyon » Sat Dec 08, 2007 7:58 pm

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Postby gwa » Sat Dec 08, 2007 8:44 pm

Lyon,

We could all be rocket scientists and digest all of the knowledge in the universe and we would still be stuck with MS.

Smarter is not necessarily better with this disease. Even the docs are clueless about the disease and how to help us.

Don't worry, be happy.

gwa :) :)
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Postby Lyon » Sun Dec 09, 2007 9:29 am

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Postby cheerleader » Sun Dec 09, 2007 6:51 pm

Hey Lyon-
Like you, I spend too much time on my computer, trying to make some sense of all the information. We're both caretakers, and we take our responsibilities quite seriously...but having time for fun is still a priority :)

I print out the info I find informative, get out the yellow highlighter, make my own notes, and then I file it in manilla folders...Topics include research, viruses, bacteria, antibiotic protocol, supplements, CRABS, stem cell, etc, etc. You get the idea. Then, when I have a question for the neuro, or want to add a new nutritional supplement, I have the info I need. I'm not the most organized gal, but I've found this system to be invaluable.

It's only because we care so much for our loved ones with MS. I appreciate your concern and dedication...as I'm sure your wife does!
keep posting-
AC
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Postby Lyon » Sun Dec 09, 2007 7:14 pm

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