New and not diagnosed, lumbar puncture question

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby Lyon » Sat Dec 29, 2007 10:05 am

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Postby coomoob » Sat Dec 29, 2007 1:56 pm

Bob - The Dr's were going to try IV sterioids but my face and arm did start to ease up Fri so they held off.

I was discharged today (Sat 1pm) and sent home. I felt great this morning, after a good sleep last night and lessening symptoms. I was saying to my mother on the ride to my house, that I might try and go out tonight to get active (after sitting or laying down for almost 3 days now). However now that I'm at home I feel just utterly exhausted again. I just feel like getting back in bed again. I really hope this passes soon as well. :(

The neurologist wants me to make an appointment Wed (soonest his office is open) to discuss/start on drug therapy. The spinal fluid showed high traces of myelin so he's 90% able to diagnose me as having MS. The other labs will come in a few days.

-Chris
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Postby Lyon » Sat Dec 29, 2007 2:08 pm

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Postby coomoob » Sat Dec 29, 2007 2:22 pm

The symptoms aren't totally gone, but I think I'm about 80% back to normal. The Dr's told me that the symptoms could stay, go away or get worse at any time or any frequency. Needless to say I was glad to see my face looking better late last night.

Thinking back over the past three days I have been more tired as of late, it seems. I didn't really think to much of it, but maybe it was building up to my "attack" (if that's what you call it).

The Dr really seems to want to persue treatment aggresively ASAP...I don't know if it's because of my age or maybe the ammount of lesions on my brain...or maybe it's just him. My mind has been running different scenarios since Thursday morning. I don't know what to think until they tell me. :?
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Postby Lyon » Sat Dec 29, 2007 3:12 pm

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Postby Terry » Sat Dec 29, 2007 5:55 pm

Seems many of the docs use the words "treat agressively". That was said to me and others that I know. ....Which would be fine IF they knew WHAT they were treating!
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Postby coomoob » Sat Dec 29, 2007 6:18 pm

Lyon wrote: :lol: That description is pretty subjective! It probably means they want to get you diagnosed and on treatment as soon as possible, which is the big push in the world of MS these days.
Bob


Well...again I'm new to all of this. I know a basic idea of MS because of working in medicine...so I'm learning.
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Postby Lyon » Sat Dec 29, 2007 6:49 pm

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Postby coomoob » Sat Dec 29, 2007 8:13 pm

Thanks for your last post. I am trying to remain optimistic. Working in healthcare I've seen the best and worst of pretty much everything. Things can ALWAYS be worse...speaking from my experiences with patients.

One thing I've found, in these past three days....how many people actually care about me. Of course my family has been coming out of the woodwork with support and visitation, calls..etc. However, my co-workers...even those I don't see on a regular basis have just been fantastic. It's really touching to see the response (not that I want all of the attention at all) - that's made me more teary eyed than the whole MS thing has come close to. So, that all helps. Thanks for your support as well. You have mine.
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Postby Lyon » Sat Dec 29, 2007 8:46 pm

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Postby coomoob » Sat Dec 29, 2007 9:01 pm

Well...I didn't have to much of an option to tell them or not. I had to have MRI, CT, LP (xray/fluro), ECHO and everyone knew why I was having these tests. When the MRI guy saw the lesions...he knew...when I was scheduled for an LP for MS...x-ray knew...etc...etc. So I couldn't have hid it if I wanted to. Everyone was so supportive and helpful about it though.

As far as the neurologist....he told me to call his office Wednesday (the soonest day they are open b/c of New Years) and get into to see him ASAP. So that's what I shall do. He wants to discuss treatment and get me into the MS Clinic in Tampa.
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Postby Lyon » Sat Dec 29, 2007 9:15 pm

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Postby Chris55 » Wed Jan 02, 2008 2:59 pm

My daughter had a spinal tap. Her doctor is about 4 hours away. No one told her not to raise her head...and she ended up with the horrible headache. Finally went to the ER where she lives after 4 days of hell. Once they applied to "patch", fluid stopped leaking from her brain and her headache went away instantly!

I would recommend you not raise your head for the recommended period. 24 hours, I believe.

The procedure itself was not bad at all for my daughter. Good luck!
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Postby lamom » Wed Jan 02, 2008 3:34 pm

thanks for the response- I did have the procedure last friday and it was no big deal at all for me-

I'm so sorry your daughter had to endure that headache, possibly unnecessarily- that's a shame. I hope she's better-
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Postby jimmylegs » Wed Jan 02, 2008 3:50 pm

glad it went smoothly. when i had the headache i was told if it wasn't gone by monday i would have to get the blood patch. so i confined myself to one couch for the entire weekend, and it was able to heal.
how long did you end up lying down for, after they took the sample?
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