This Is MS Multiple Sclerosis Community: Knowledge & Support

Since I was about fifteen I've noticed that after eating anything (especially fatty foods, it's much worse) that I get a sort of stinky fatty oil smell emitting from the pores of my face around my nose and chin and cheek bones. All I have to do is rub my face and I can smell it on my hand.

It is definately something internal, because I can wash my face until it is chapped and red and the smell is still there.

It has significantly gotten worse in the past few years (along with my MS).

Does anyone else have this?

not me, sounds unpleasant to have to deal with. any improvement with the recent regimen at all?

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I don't recall ever having an odor emitting from my face. However, I gave up eating fast food roughly 22 years ago. Whenever I ate the stuff it would make my whole body ache. Eating french fries would cause the same effect. In addition, after eating french fries I would also get a greasy feeling on my face that would slowly spread across it. Wiping my face with a napkin was pointless as the greasy feeling would remain. As I noted above, I haven't eaten fast food in many years and the closest I get to it now is a deli or sub sandwich.

NHE

Unfortunately, it is not "you are what you eat" in my case, I have a feeling.

If you read about certain metabolic disorders, there are specific related VERY UNUSUAL body odors that are associated with them..

Some of these metabolic disorders cause neurological disruption and demyelinization. Long chain fatty acids, short chain fatty acids, etc,etc. goes along with many of them.

The thing that makes me wonder is that every time I have a lot of protien or fatty foods, the odor becomes severely noticeable. I'm not imagining it, because a girlfriend I had noticed it while kissing me. She said it was not of this world (in her own words). And it has nothing to do with spices, if that's your next thought. I could have the blandest meal, but still have the odor.

Believe me, I've lived for 13 years with it. It has caused enough embarresment with people who catch a whif of it, that I know there is something wrong

Now I read that many severe neurological disorders are associated with strange odors that emit from human pores. These are due to not being able to break down certain protiens or fats.

I wonder and wonder if this may have something to do with my MS.

And as far as the glucosamine, it has not changed this odor.

I have been taking Milk Thistle (a clinically proven liver dexoifier) that controls the odor, as long as I take much more than the recommended dose. There are apsolutely no side affects with this plant, for me anyway.

I say again, I wonder if my liver is not metabolising certain things. The odor has gotten stronger as my MS has gotten worse. And again, I'm not imagining it, others have mentioned this.

And I forgot to mention, these other diseases that are associated with strange inhuman odors are NOT autoimmune. They are metabolic in nature.

Missing or disfuntional enzymes that won't carry things through to the other side, for lack of a better discription.

In many of these odor ridden diseases, it ends in the fryin' of the myelin.... much like MS, but sped up 100 times faster.

To NHE:

I also know the greasy feeling, as does everyone who has ever eaten fast food....

Unfortunatelty, with fast food it gets the worst. MUCH MUCH worse.

Supposing I ate some steamed vegetables one night. The smell would be there, but lighter....

When I eat McDonalds, I smell like a cheese factory mixed with putrid bile.

A nasty thought, but I admit it freely now....Especially since I think that it may relate to my MS....I think many people may also have this, but the odor is way too much for people to have the guts to admit to.

In addition, I wonder if doctors really know how many fucked up varieties for MS there actually are.

its a no from me.