Anyone out there with their Brainstem affected by MS?

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Anyone out there with their Brainstem affected by MS?

Postby Fighter » Thu Jan 10, 2008 6:21 pm

I have experienced neurological symptoms since 2001. However, I did not receive my diagnosis until Dec. 2007. My MRI showed significant damage to my Brainstem. It does explain my tachycardia and neurogenic bladder.
Has anyone experienced Brainstem damage?
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Postby GeoGuy » Thu Jan 10, 2008 7:35 pm

Fighter,

I was diagnosed last January when a large lesion formed in my brainstem. It gave me vertigo and double vision which was treated with Solumedrol and physical therapy. I have not had bladder issues or tachycardia. But as they say, everyones MS is different.
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Postby jimmylegs » Thu Jan 10, 2008 7:46 pm

i can't remember.
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Postby CureOrBust » Fri Jan 11, 2008 2:24 am

My last MRI talked of lesions in my "pons", which if i am not mistaken, is on the brainstem.
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Postby lamom » Sat Jan 12, 2008 7:36 pm

I don't have a diagnosis, but do have a one cm lesion on my brainstem- midline of the midbrain I believe. The symptoms that brought me to the nuero were dizziness and ringing in the ear-
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Postby lamom » Sat Jan 12, 2008 7:38 pm

what is considered a large lesion btw? I can't ever seem to get a good answer- nuero described my 1 cm lesion as "a tiny spot"...
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Dizzyness and ringing in the ears

Postby lyndacarol » Sun Jan 13, 2008 8:11 am

lamom, the symptoms you mention
The symptoms that brought me to the nuero were dizziness and ringing in the ear-
seem quite commonly associated with other problems. For example, were you checked for sinus problems--sinus infection or sinusitis?
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Brainstem

Postby Fighter » Sun Jan 13, 2008 12:55 pm

I believe 1 cm lesion is considered small.
I guess this discussion shows that neurologist do not explain to patients where their lesions are and how their symptoms relate to where the lesion is in the brain.

I just wanted to know how people where doing with Brainstem involement since that is where my lesions primarily are.
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Postby scoobyjude » Sun Jan 13, 2008 4:07 pm

I have a lesion on my brainstem that was found 4 years ago. I don't know if it was considered large or small but I had various major symptoms. Not sure which were from that lesion and which were from cervical lesion. I don't know how much permanent damage I suffered but on my last MRI my neuro told me it is almost indetectable now.
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Re: Dizzyness and ringing in the ears

Postby lamom » Sun Jan 13, 2008 7:53 pm

lyndacarol wrote:lamom, the symptoms you mention
The symptoms that brought me to the nuero were dizziness and ringing in the ear-
seem quite commonly associated with other problems. For example, were you checked for sinus problems--sinus infection or sinusitis?


Yes- I'd been seeing an ent for over a year when he ran out of tests to do and sent me to a neuro. I go back tomorrow for a follow up from spine/brain mris- only had a brain mri in sept which showed the brainstem lesion. A month or so later I developed pain and weakness in my left hand which lasted for several weeks and prompted him to do another mri as well as the spinal. I also had an lp 2 weeks ago that did not show any o bands.
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