This Is MS Multiple Sclerosis Community: Knowledge & Support

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Bob, reading articles like these were exactly why I got back on my elliptical. I don't know how much it will help but it can't hurt.

I need to get my ass back in gear on the resistance training. I can't do elliptical or anything cardio because my legs just go goofy. I tried riding a stationary bike a little bit and I lasted about 20 seconds before I started sliding off the seat. My mom is looking into a recumbant stationary bike. I think I will be able to do that. I can, however, use my bowflex. I just haven't been. After 5+ years of serious exercise, I was "waiting" until I got on my Tovaxin to drag myself back on the bowflex. It is just so hard after a ten hour day that I get really down about not exercising. I also need to get my foot surgery done, which I was waiting on the extension for Tovaxin to get going to do. It's getting worse and along with my wobbly legs, I have a limp from my foot. That little limp just zaps my energy. I think I am going to schedule the surgery and the trial be damned. I say that, but the reason I was waiting is that I didn't want to have a bunch of NSAIDS in me and stuff in preperation to take a vaccine. I'm just going to have to grin and bear it, because I could walk more if I wasn't stepping on a nerve with every step.

Reading those articles just reinforces how important it is for us to move as much as we can. I mean "normal" people don't atrophy just sitting around and watching the tube. I think we do!

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I'm going to try and hold it off. The problem is that due to my almost flat feet, I can't even walk around the house barefoot or my knees and back kill me since I'm all hardwood except in the bedroom (plus, lucky me, my MS pain area seems to be in my feet to some degree which is why I didn't even get this checked out for so long; I just thought it was MS). But the ball of my foot is so tender that when I put my "cushiest" shoes on, it hurts. Literally just putting the shoe on puts enough pressure on the ball of my foot that I have to start favoring it right out of the gates. It is really getting painful. I plan on calling my podiatrist Monday to see how long he thinks I'll need anti-inflammatories and if it conflicts with my early dosing schedule, then I will wait. However, if he says that it is less of a big deal than I imagine, I'm getting it done.

By the end of the day I'm so wore out from walking around on my aching ass foot that it's really getting depressing. I want to hang on and wait, but I thought my wait was going to be much shorter. Can you say I thought my extension shots were going to be in Novemember? It just get frustrating knowing that every day I put this off, it's going to hurt more. When I thought the schedule was so "fixed' from Opexa, I didn't worry about waiting. Now, after all the delays, I don't know if I'll actually get my shots when they have told me I will. I just don't take everything that Opexa says at face value anymore, and I know I can't wait much longer to get this done. I guess I could call down there again and ask them to "check" on my cells. My worst nightmare is that we get to the end of the cell culture and they notify me that something went wrong and we have to do it all over again. After the track record last year, I just can't say I have total faith in them coming through. Probably a lot of me just being pissed, but it is what it is.

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Glad everyone is so energetic. I put a gold star in my journal if I can just take a shower and dress myself without falling over.

gwa