Sinusitus and MS

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby gibbledygook » Tue Mar 18, 2008 9:52 am

How about the Epstein Barr virus and it's positive correlation with nasopharyngeal cancer;
<shortened url>
This article discusses how bacteria could cross through the nasopharyngeal mucosa. I guess virii could do the same
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My money's on epstein barr.
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby Lars » Sat Mar 22, 2008 8:48 am

Dom,
Interesting theory. I have questioned both the "leaky gut" and the sinus issue but had not thought to relate them to one another. I have become more and more convinced about the connection with my sinuses, but I am having trouble finding any research (besides my original post) in this area. I have begun to ask everyone I know with MS and I am not surprised to find out VERY few people with MS have healthy sinuses. Maybe the MS research community finds this all to be to simple. I would love to see some attention given to this. I would be more than happy to volunteer.
Take Care,
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Need for sinus research

Postby lyndacarol » Sat Mar 22, 2008 2:34 pm

I agree with Lars who said,
I have begun to ask everyone I know with MS and I am not surprised to find out VERY few people with MS have healthy sinuses. Maybe the MS research community finds this all to be to simple. I would love to see some attention given to this. I would be more than happy to volunteer.

I ask the same of friends with MS and have found the same results.

Lars, are you serious about being willing to volunteer if I can find a researcher willing to investigate some aspect of this? Or were you joking? I don't always pick up on jokes...too gullible, I guess.
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Postby ssmme » Sat Mar 22, 2008 5:09 pm

TwistedHelix,

You have described the runny nose syndrome that runs in my family. My mom, my two sisters, my brother and I all have this nose. I call it the puppy dog nose because my nose is ALWAYS wet. I don't get more colds than others and I don't have allergies. I went to an ENT who said I needed allergy testing. I got allergy tested but was allergic to nothing. My nose is not stuffy except when I have a cold but I ALWAYS ALWAYS have a wet/runny nose. I'm sure most of it drains down my throat and into my gut. I always wondered if my family had larger tear ducts than most people and that they have a more direct and larger link to our nasal cavities thus making us more prone to the runny nose.

The only thing is that I am the only one who has MS in my family and there are no others up the family tree who had or have it either. I'm pretty sure though that the runny nose thing goes way back. My grandmother died at 104 years old and I can remember her always having a hanky in her hand to dab her nose.

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Postby Lars » Sun Mar 23, 2008 9:43 am

Lyndacarol,
I volunteered for the Tovaxin trial, have decided if that doesn't work to try Revimmune by the way you should look at Accentia's web site, they have a drug in trial for sinusitis, coincidence? So, when I say I would volunteer, I'm your guy.
Happy Easter,
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Postby Punchy » Mon Mar 24, 2008 2:55 pm

Another bad sinus here, but I had my problems between the ages of 2 and 6 years old. I think my MS started about age 14.
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Postby lyndacarol » Fri Nov 26, 2010 7:19 pm

No doubt, you all remember my fascination with insulin – a recent Google search, "chemistry of mucus," informed me of additional properties of mucus. I have always described my sinus drainage as "sweet," now I know the reason. Mucus is heavily glycosylated – the mucins have a dense "sugarcoating."

I suspect that the constant sweet mucus drainage, ever since my pneumonia at age 6, has prompted my pancreas to produce insulin nonstop. I believe this accounts for my excess insulin even though my diet now is almost entirely devoid of sugar and carbohydrates.

I suggest that any of you with similar sinus drainage, chronic sinusitis, or allergies that result in increased mucus educate yourselves, too, about the characteristics of mucus.

Phe and others have reported symptom improvement when they take decongestants; many with allergies and MS report that symptoms worsen during allergy season; I now think it is the increased mucus that accompanies colds, viruses, and the flu that is responsible for an increased secretion of insulin and, therefore, a temporary worsening of MS.

In my mind, this mucus-sugar connection seems to fit and explain some voids in the excess insulin hypothesis in explaining my case.

Just thought I would share some of my discoveries and my thoughts. I always appreciate your thoughts, too.
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Postby Talisker » Sat Nov 27, 2010 3:20 am

Don't know if it's related but as a child I had an ear nose and throat infection that lead to bad tinnitus. That ended with me having my tonsils and adenoids removed and grommets placed in my ears to drain fluid. I always had a feeling that I may have picked up an infection that lead to MS. I also thought there might be a connection with the fact that adenoids regress around the age of puberty and if you take somebody from a low incidence area to a high incidence area after the age of 15 they keep there low incidence rate.
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Postby Luvsadonut » Tue Dec 14, 2010 3:44 pm

Just adding my thoughts although probably completely unrelated...Although I wasnt diagnosed until I was 29, when I was a small child through to a teenager I had my nose cauterized on numerous occassions, since then, Ive have had sinus pain (usually linked to heavy colds) and trouble taking deep breaths though my nose. Recently, with the CCSVI coverage I thought that the cauterizations may be linked to CCSVI but Ive been told that it would be unlikely.
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