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PostPosted: Fri Feb 29, 2008 8:09 pm 
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HarryZ wrote:

MS patients, due to the very nature of their illness, have areas of the body where the muscles simply don't work properly.


Good point Harry,

This is a lesson I had to learn the hard way. Before diagnosis I still exercised to the max, taking a morning power walk besides doing other exercises as well. I had spasticity with pain and spasms in my legs but I had no idea what it was at the time. I didn't even imagine anything at all was wrong with me.

I still sometimes hurt myself by overdoing it. Spasticity and heat intolerance are both problems for me. It's not easy to accept slowing down when you're a former overachiever.

Now, I'm at the point of having to psych myself up to even exercise at all, but I know that if I want to keep my mobility, I have to keep dragging myself into the TV room and doing it (since I can't exercise outside anymore.)

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Take care, Ewizabeth Previously Avonex, Rebif & Copaxone RRMS ~Tysabri, 31 infusions, ended 9/09. Starting Copaxone 12/09, waiting for Cladribine to be approved in 2010.


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PostPosted: Sat Mar 01, 2008 7:21 am 
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robbie wrote:
The person doing the exercise knows when enough is enough healthy or sick.

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You have to know your own body and when it tells you that trouble is coming, you have to react accordingly.

I think thats what i said Harry

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Had ms for over 19 years now.


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PostPosted: Sat Mar 01, 2008 8:19 am 
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I agree Harry and Robbie. If you can run - do it! If you need a cool pool of water to swim in - do it! If you can sit in your wheelchair and do an arm curl - do it! DO SOMETHING! Get those nerve pathways sending signals to the muscles.
Try visualizing activating a nerve from the brain, down through the spinal cord and out to move a finger or a toe. You don't need to move the finger or toe to get the nerve to activate. Reverse the nerve response -visualize putting your hand on a hot stove.

Everyone has their own exercise threshold, whether it be running or sitting in a wheelchair. Listen to the body!

Sharon


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PostPosted: Mon Mar 03, 2008 7:49 am 
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Last edited by Lyon on Tue Nov 29, 2011 6:52 pm, edited 1 time in total.

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PostPosted: Mon Mar 03, 2008 8:44 pm 
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dignan and loobie, thanks for your input. I don't plan on getting to the marathoning stage, I never have, but I do a lot of shorter distance high intensity stuff. When it comes to local 5ks and the likes I'm generally able to be in contention for the lead. I noticed lhermitte's for a month or so but since then I haven't experienced it, I'd imagine it was a flare up. My body has actually been responding to my training quite well and I really think it keeps my mind sharp.

That said I'd be more than willing to participate in a study noting the effects of intense exercise on MS patients.

Oh I also wanted to add that I start on Copaxone later this week and I'll update you guys how that makes me feel, just in case anyone is interested.


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