AllyB wrote:Hi guys
Pardon my ignorance folks, but I need some personal experiences of ON from anyone willing to share...
I saw my Neuro on Monday, and during my routine exam, he spent a lot of time both looking into my eyes with that little light thingy and asking me to follow his finger - then he asked me if I had any vision problems.
I have, for about the last week or 10 days or so, had pain in my rt eye when I move it, and the vision seems a bit more blurry - but nothing huge - I still have reasonable sight etc. None of this worried me unduly - I would not have mentioned it to him if he had not asked, but after pondering a bit he decided that my eyes were fine.
That experience was a bit of a red flag to me as he went on to emphasize that if anything worsened etc I had to come straight in for steroids...
My question(s) is (are), can a Neuro really tell if you have Optic Neuritis just by looking at your eyes, especially if the attack is mild, or very recent/still in progress? Should I see an eye specialist, and can they tell any better? I am not by any means knocking either medical profession I know that they are all very clever - I am just looking for some opinions from fellow forum members!
I don't really want any more steroids (or scans), but at the same time, I don't want my vision to get bad as happens to so many folks with ms - I also know that steroids will not necessarily change the outcome....!
So far my MS symptoms have completely avoided my eyes (except for a very early - 8 years ago - mild visual issue that completely resolved) - but all my MS symptoms are and have always been right-sided, and it is my right eye that is a slight worry now...
Sorry for the epic story, opinions would be most welcome, and I know that they are just opinions - I just don't know if my situation warrents me leaving it with my Neuro's ok, or if I should see someone else too...I may be just parranoid! Wish this had a spell check...
Thanks for all the support.
AllyB wrote:Hi Eyedoc
Thanks so much - everyone has been so supportive, but this is the kind of direct advice that stops me from dithering - I am a bit of a ditherer - hate to appear a hyperchondriac!
I still have pain when I move my rt eye and my vision is more blurred, although I don't think I have lost vision. This has been for about 2 weeks now...
We have a long 4 day weekend now for Easter - I will make app with Opthalmologist on Tues when everything opens up again - hopefully he will see me soon - I know him quite well and he is a really nice guy, so I think he will. I was just so hesitant to second guess my Neuro as I wasn't sure how this was diagnosed, he seemed satisfied at the end of the exam, and it doesn't seem too bad.
Is On treated with IV steroids like other ms attacks, or is there drops for the affected eye, or other medication? I guess I am actually asking what the treatment would be if it is ON, and how effective is the treatment, in general?
Thanks once again for your time - it is much appreciated.
AllyB wrote:Hi EyeDoc
Once again - thanks for all the time you have given!
So, basically, the treatment is the same as it would be for any other ms attack - high dose IV steroids over 3 to 5 days (I have had it a few times before for other relapses - 1 gram iv daily, both in hospital and in my Neuro's rooms - not pleasant, but better than waiting for the attack to just get worse!). After pondering on it, I realised I was having a blond moment (although I am a redhead!) - that eye drops wouldn't work, given the anatomy of the eye....But one can only live in hope.
I guess my biggest problem was in not being sure if I was having an episode of ON or not (given that I had seen my Neuro), and one doesn't want to appear a hyperchondriac (folks with ms are sensitive to this in many cases as some of our issues are not overtly noticable - they are subjective) and being too embarrassed to go to an Opthalmologist in case there was nothing wrong, combined with a tiny dose of denial or fear in case there was something wrong - maybe I thought if I kept quiet it would just go away!
It may still turn out to be nothing - if I have a problem, then you have really encouraged me to get help and that may help prevent any further damage, and even if my eye is fine (appreciate the 'good luck' wish - fingers crossed and all that), you have given me the courage to at least get it checked out and ignore the shame of bothering docs all the time when they can't find anything wrong!
So you have done a really good service to me (for which I thank you again - why do we worry so about what our doctors think of us?), and probably to others who are uncertain and who, on reading this, will get a consult about any problem that may be nagging at them.
Way to go!
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