MSers in Los Angeles / So Cal area-- wanna share local info?

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MSers in Los Angeles / So Cal area-- wanna share local info?

Postby Longing4Cheese » Wed Mar 19, 2008 10:14 pm

Hello. I'd like to know if there are other people on this site who live in the Los Angeles (or broader Southern California) area and who would like to share information with other locals with MS.

I was Dx with PPMS in June 2007 and have seen three neurologists at two hospitals, including one former and one current head of the UCLA Dept. of Neurology. I'm still looking for my primary neurologist and would love to share information with some locally-based people.

I suggested in a post about ten days ago that a region-specific area on ThisIsMS.com would be helpful, but haven't received any reply, so I thought I'd just start by inquiring if you are out there!

Best,

Jack Sprat
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Longing4Cheese
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I am in SD county

Postby nenebird » Sun Mar 30, 2008 12:24 pm

I am recently diagnosed with PPMS also. I am contacting the Local MS chapter for meetings etc. I like the idea of having a PPMS network, since we are the minority, have no treatments, etc.
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PPMS in LA

Postby Longing4Cheese » Sun Mar 30, 2008 5:55 pm

Aloha and welcome, Nenebird. ("Welcome to the club that no one wants to belong to," as someone here wrote to me.)

I see that you joined this forum yesterday and this is your first post. I found this forum about six months ago, which was three months after I was Dx (diagnosed). I have found this site to be more helpful than most, and the community most welcoming and supportive. You might want to post a little shout out in the "Introductions" forum some time.

I posted a hello when I first joined, in which I outlined my experience up to that point (pre-Dx, and the MRI and LP that I had to confirm Dx, and ditching my first neurologist). If you'd like to read that and the responses from members here, you can go to
http://www.thisisms.com/ftopict-4392-.html
or Search for "A recently diagnosed new member in Los Angeles".

It's a big question, but may I ask, what are you looking for right now?

I or others on this site may be able to help you find answers or point you in the right direction.

By the "local MS chapter" do you mean the National MS Society's local chapter? I am interesting in hearing about what you encounter when contacting them. I haven't tried that route yet.

I'm not sure if there is a way to send a "PM" -- a Private Message -- but I'd like to find out. If we manage to put together a subgroup (PPMSers in SoCal) we might want to be able to send messages that aren't always in the wide open public domain. I don't have anything specific in mind, but it just seems like that could happen.

Again, welcome.

Longing4Cheese
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Jack Sprat
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Posts: 51
Joined: Tue Sep 04, 2007 2:00 pm
Location: Redlands, California


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