SPMS

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

SPMS

Postby 777 » Sun Apr 06, 2008 6:01 am

Do people with SPMS recover from attacks? I know RRMS we can. I recently had a MRI and it showed no enhanced lesions or activity yet I had a severe attack that lasted 7 months. I am better now but wouldn't something show up on my MRI? My neuro says I am RRMS still but I had this illness for 10 or so years. I find it odd I have no inflammtion. Isn't that assosicated with SPMS only?
777
Family Member
 
Posts: 83
Joined: Sat Mar 01, 2008 4:00 pm

Advertisement

Postby gwa » Sun Apr 06, 2008 7:22 am

There was an article published within the past 6 months that described the new stronger MRI, I think it is a 7 Tesla. When patients are run through it, hundreds of lesions show up, even though no lesions showed up in a weaker MRI.

You should be able to Google for info on the machine. Now I discount any MRI that shows nothing and just assume it is weak. I don't know when the new 7 Tesla will be available nationwide, but as I remember there are only a few available now.

As far as SPMS people recovering from attacks, yes they do, but long term damage does not go away like when a patient was RRMS. SPMS patients tend to slowly go downhill without much improvement. The only time I have a bad relapse is when another problem such as a cold or the flu gets me.

Since I went from RRMS to SPMS in approx 1985 or so, I have gone from using a cane to using a walker constantly and a wheelchair outside of the house. During this time frame, I had very few attacks, just a slow decline that appears unstoppable. I think I am the norm for SPMS.

gwa
User avatar
gwa
Family Elder
 
Posts: 846
Joined: Thu Dec 01, 2005 4:00 pm

Postby SarahLonglands » Sun Apr 06, 2008 7:56 am

777, when my MS became progressive, from about the turn of the century, I still could have relapses, from which I recovered to an increasingly lesser extent. Behind that there was constant eating away at abilities. Big white patches which are fluid due to inflammation would still populate my scans and this was with a definite diagnosis by a neurologist of SPMS.

Now, with my treatment I have had no new MS events for nearly five years, the white patches have all faded and some have disappeared. This has gone along with my mental and physical improvement so I can't in all honesty call self SPMS any longer. I am not yet brave enough to say that I used to have MS, though.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2106
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby Lyon » Sun Apr 06, 2008 9:09 am

.
Last edited by Lyon on Mon Nov 28, 2011 4:47 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby 777 » Sun Apr 06, 2008 9:39 am

I was happy to find out I had no progression, yet on the other hand when I had no inflammation thatrang some alarms. When I was first dx with MS years ago I didn't know there was SPMS and PPMS. The more Ilearn the more frightened I get.
777
Family Member
 
Posts: 83
Joined: Sat Mar 01, 2008 4:00 pm

Postby Lyon » Sun Apr 06, 2008 9:55 am

.
Last edited by Lyon on Mon Nov 28, 2011 4:47 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby gwa » Sun Apr 06, 2008 9:55 am

bob,

Mice experiments and MRI results are tied for first place on my list of mostly useless things to brag about when researching and prescribing for MS.

gwa
User avatar
gwa
Family Elder
 
Posts: 846
Joined: Thu Dec 01, 2005 4:00 pm

Postby 777 » Sun Apr 06, 2008 10:47 am

Well it's a little depressing because I was hoping to get on revimmune or one of the Stem Cell trials. This is when I learned about inflammation and RRMS and SPMS.

At first I thought great!! I have no new lesions, nothing acitve. I thought everything was going good. Then I after reading the trials and the requirments, then doing some research. I realized I may in fact be SPMS.

I understand why revimmune would not benefit those without inflammation, but I dont see why the SCT would not work.
777
Family Member
 
Posts: 83
Joined: Sat Mar 01, 2008 4:00 pm


Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service