rr vs spms and ppms

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Test for inflammation

Postby lyndacarol » Thu Jul 10, 2008 6:08 pm

AC--you wrote about a test for inflammation:
The name of the blood test Jeff has is an ESR, Erythrocyte sedimentation rate. His GP ordered it because of all his weird petechiae and bruises....she was ruling out leukemia and vasculitis, which were negative, but this test keeps coming back high. It is a non-specific test, and all it does is show inflammation. I'll bet the bank that all MS patients have high Sed rates on this test.

I am not a physician and I don't know much about these tests; there may be many with similar names. I have had a "Sed Rate Test" and it was normal, perfectly fine--not high at all. (I know the test is usually given to people suspected to have rheumatoid arthritis--RA. They certainly have inflammation and high sed rates!)

There is another nonspecific test for general inflammation in the body: the C-Reactive Protein (C-RP) test. It is thought by many to be a better indicator of heart disease risk than a cholesterol test. I think I recall that about half of those who have heart attacks do not have high cholesterol. It is thought these people have a high C-RP. (My father-in-law has never had high cholesterol in his life! But had a heart attack at age 60; he is 88 now. He has never had a C-RP test.)

There is another called the"high sensitivity C-Reactive Protein test (hs C-RP);" it is more attuned to vascular inflammation as in vasculitis (I suspected this, but, once again, the results were normal.)

I still suspect my hyperinsulinemia has damaged my blood vessels, accounting for "prickly" feeling in my feet, legs, and fingertips!
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Postby Lyon » Thu Jul 10, 2008 6:08 pm

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Postby robbie » Thu Jul 10, 2008 6:36 pm

when you have spms and your getting worse, i can feel it affecting my arms and hands. with a new area of the brain or spinal cord being attacked is there inflammation and could this be helped by any of these drugs that are for rr ms ?
Had ms for over 19 years now.
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Postby Lyon » Thu Jul 10, 2008 6:59 pm

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Postby Shayk » Thu Jul 10, 2008 7:40 pm

Robbie wrote:
Who gives a shit Chicken or the Egg... why won't they give these drugs to spms, there are people here who are border line rr/spms getting accepted or not being accepted and it feels like there is a window here that if it closes you will be left behind.

Robbie believe it or not I can definitely understand why you don't give a shit about the chicken or the egg....

I just checked the clinical trials site. There's a trial of Simvastatin for SPMS. Investigation of Simvastatin in Secondary Progressive Multiple Sclerosis (MS-STAT)

Even though the trial is in England it maybe something you want to investigate with your physician since it's readily available.

Sharon
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Postby Lyon » Thu Jul 10, 2008 7:56 pm

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Postby robbie » Fri Jul 11, 2008 6:16 am

Too bad they won't treat you on a compassionate basis but I don't think you'd go through with it....would you?

i would for sure, might not have the impressive results their looking for but it might stop it where it is now. i can still wipe my own ass for now, i need this or death.
there is also some here that are border line rr/spms and to think that they wouldn't be accepted?
Had ms for over 19 years now.
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Postby Lyon » Fri Jul 11, 2008 6:35 am

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Postby gwa » Fri Jul 11, 2008 6:50 am

Lyon wrote:
Personally, if I were in your position, I would be in contact with the people at JH and I'd be such a long term pain in the ass that they would either have to treat me, get a restraining order against me or hire a hit man to eliminate me.

Bob


robbie is Canadian on their health care program. I would be surprised if he could get funding for the $60,000 to pay John Hopkins for a treatment that is still experimental.

gwa
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Postby robbie » Fri Jul 11, 2008 8:09 am

no money
Had ms for over 19 years now.
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Travelling south to escape MS and other B.S.

Postby PayneHertz » Thu May 21, 2009 1:38 pm

Hi All,


The saying is "garbage in = garbage out" and it's quite accurate. The U.S. once had a lot of success with histamine (bee venom contains 1%, histamine, I believe) via the Mayo Clinic. Today they (the AMA) call everything "auto-immune" (up to over 60 diseases now: lupus, MS, rheumatoid arthritis, AIDS are the most well known) they use riskier and more expensive medicines and a lot of people don't like them because of the side-effects. In Europe they don't believe MS is auto-immune nor incurable and they SURPRISE get more people cured.

The reasons there is less MS in the Southern Hemisphere then in North America and Europe are these:

A. less accurate data collection (MS might be labeled some other ailment there based on one or two symptoms)

B. less reliable examination techniques (poor countries don't have MRI and CAT scan capabilities as much as we do.

C. Less processed food and fewer toxins in the food industry (you're much more likely to die of food poisoning there, but your food won't have all the additives, steroids and anti-biotics ours has)

D. More likelihood of living in a rural environment without smog, ground level ozone, etc.
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Re: Travelling south to escape MS and other B.S.

Postby NHE » Fri May 22, 2009 12:31 am

PayneHertz wrote:Hi All,


The saying is "garbage in = garbage out" and it's quite accurate. The U.S. once had a lot of success with histamine (bee venom contains 1%, histamine, I believe) via the Mayo Clinic. Today they (the AMA) call everything "auto-immune" (up to over 60 diseases now: lupus, MS, rheumatoid arthritis, AIDS are the most well known)


AIDS as autoimmune? Now that's funny.
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Postby cheerleader » Fri May 22, 2009 11:12 am

NHE wrote:
PayneHertz wrote:Hi All,


The saying is "garbage in = garbage out" and it's quite accurate. The U.S. once had a lot of success with histamine (bee venom contains 1%, histamine, I believe) via the Mayo Clinic. Today they (the AMA) call everything "auto-immune" (up to over 60 diseases now: lupus, MS, rheumatoid arthritis, AIDS are the most well known)


AIDS as autoimmune? Now that's funny.


Yeah, I think there was an acronym error...AID stands for autoimmune disease....not AIDS 8O The AMA does not call AIDS autoimmune.
Read the link you posted payne...we've been discussing nitric oxide here for awhile...not new ideas, and we've got alot of great discussions going on here regarding new ways of looking at MS. Not really "garbage" per se...
As my teenage son says...lurk more!
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