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Postby Andesine » Wed Apr 30, 2008 7:49 am

Nenu wrote:
Andesine wrote:Sally, my MS dx started with Double Vision, light sensitivity, weird sort of pre migraine shapes and light that never progressed further.


Do you mean you never developed the migraine following the shapes? I certainly experienced this myself, back in 2001. Years before my MS dx.

This is an excellent example of what happened in my case...Imagine this in 1 eye, and that's what would come on and then disappear, over approx 30 minutes (as shown in this particular example)

Image


That's it exactly. Very pretty but disconcerting. I kept waiting for the migraine but it never came.
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Postby Nenu » Wed Apr 30, 2008 8:15 am

Yeah go figure. I only ever saw these in 2001 for a period of about 4-5 months. Then I never saw them again. That should have set off the warning flags at the time, but of course it did not. I just figured it was migraine aura and left it at that, never questioning why I didn't get the headache to follow, because it does state that some people never do get the headache.

In 2004/05 I had what I figure are trigeminal neuralgia headaches. Stabbing pain in the left side of my face at the time, so bad I could not lay down in bed to try and sleep. I'd get in a bath of hot water to draw the pain out of my head. It was the only thing that worked. Once I calmed down a bit, then I could pass out and sleep 10 hours lol. This is probably when I should have pushed for the MRI, but I'm a stubborn person, sucked up the pain, took more Advil and went to work.

It's when I had drastic temperature changes in Jan. 07 that I woke up shivering and shaking (had to get in warm tub again), then woke up drenched in sweat, that I finally got off work and got answers.
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Postby Andesine » Wed Apr 30, 2008 8:52 am

I'd had it once before, a couple of years ago but next day it had gone. I would have ignored it this time as well but then I woke up one morning just before Christmas and could see two of everything. I knew that wasn't right.

I sat through 4 hours of eye tests by 4 different specialists and each one said there was nothing wrong with my eyes. Finally one suggested it might be an idea to see a Neuro and get an MRI done as I had upscale Nystagmus that kept switching from one eye to the other.
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Postby cheerleader » Wed Apr 30, 2008 9:25 am

Sally-
My husband has found his Eckert Tolle reading to be very helpful. He tries to stay present in each moment...instead of worrying about tomorrow, he appreciates all he can do now. Like hug his son, walk the dog, laugh with me. The best advice I can give you is not to worry about the things out of your control. You will have a diagnosis in the future. You are right to do all you can to boost your good health right now. Look into vitamin deficiencies (read as many as Jimmylegs posts as you can! She's my vitamin guru) Keep your body healthy. And relax your mind. Our bodies and minds are deeply connected. You will have answers, but making yourself sick with worry now will not help you.


Andesine and Nenu-
You're describing optic migraine...which only affects the vision, there's no headache afterword. I've had them for four years, and get them before my period. I used to get classic migraine with aura as a young adult. They went away in my thirties. Funny thing is, I've had a couple MRIs and all the MS tests before I even knew about this disease, or before my husband was diagnosed. Our joke is that he always "has to do one better" than me! I just have migraine, but he has MS!!!

AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby jimmylegs » Wed Apr 30, 2008 9:46 am

i only ever had two migraines, and they were so far apart... one in say maybe '84 with no visual symptoms, just major cognitive difficulties from the pain. one in about '96 with this lightning worm creeping into my vision. it was in an office and the pain and visual stuff only hit me under the flourescents. if i went into an outside office with daylight only, everything went away. i was trapped in there all day. it went away so i never looked into it further. i have no idea what could have brought them on or why i haven't had another.
good call on spotting the nature of those visual symptoms cheer.
and thanks for the props ;)
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Postby BioDocFL » Wed Apr 30, 2008 10:04 am

SallyDC,

You said you moved into a new apartment. Could there be anything toxic around that, like mold? It can give some bad symptoms. Possibly an inspector can check around for you. It's something you can do while you are waiting for a diagnosis regarding any MS.

Wesley
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Postby Loobie » Wed Apr 30, 2008 10:23 am

The words "Knowledge is Power" really apply to MS. For some reason, understanding seems to calm down some of the fear for me.
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Postby jimmylegs » Wed Apr 30, 2008 10:26 am

D.I.T.T.O!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Postby Nenu » Wed Apr 30, 2008 11:58 am

cheerleader wrote:Andesine and Nenu-
You're describing optic migraine...which only affects the vision, there's no headache afterword. I've had them for four years, and get them before my period. I used to get classic migraine with aura as a young adult. They went away in my thirties. Funny thing is, I've had a couple MRIs and all the MS tests before I even knew about this disease, or before my husband was diagnosed. Our joke is that he always "has to do one better" than me! I just have migraine, but he has MS!!!

AC


Oh really? I always called them 'migraines with auras' because I read that you may or may not get the headache with the visual. I have the classic migraines, but I guess I also got optic migraines! ;) I wonder why they just disappeared one day. I was living in a house at the time I experienced these, where the girl upstairs (who as I recall, had MS) was also having them. 100 year old home... I am thinking there was something in there that was triggering them.
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Postby robbie » Wed Apr 30, 2008 12:54 pm

"Knowledge is Power"

to know why your getting f@#$ed up makes it alot better especially when there’s nothing they can do about it.
Had ms for over 19 years now.
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Postby jimmylegs » Wed Apr 30, 2008 2:06 pm

smart ass ;)
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Postby jimmylegs » Wed Apr 30, 2008 2:30 pm

hiyas, i'm re-posting this abstract here because the issues seem to be hitting a lot of the content from the nutrition standpoint.

i enjoy this one, because it pulls so many things together. yes, some odd sentence structure, and yes, the conclusions come out of nowhere... unless, i suppose, you dig into the methodology and discussion more... but overall, some interesting thoughts:

Multiple sclerosis (MS) has a much higher incidence among caucasians that in any other race. Furthermore: females are much more susceptible than males and white females living in colder, wetter areas are much more susceptible than those living in warmer areas. On the other hand, menstruating women have increased copper (Cu) absorption and half-life, so they tend to accumulate more Cu than males. Moreover, rapidly growing girls have an increased demand for zinc (Zn), but their rapidly decreasing production of melatonin results in impaired Zn absorption, which is exacerbated by the high Cu levels. The low Zn levels result in deficient CuZnSuperoxide dismutase (CuZnSOD), which in turn leads to increased levels of superoxide. Menstruating females also often present with low magnesium (Mg) and vitamin B6 levels. Vitamin B6 moderates intracellular nitric oxide (NO) production and extracellular Mg is required for NO release from the cell, so that a deficiency of these nutrients results in increased NO production in the cell and reduced release from the cell. The trapped NO combines with superoxide to form peroxinitrite, an extremely powerful free radical that leads to the myelin damage of MS. Iron (Fe), molybdenum (Mo) and cadmium (Cd) accumulation also increase superoxide production. Which explains MS in males, who tend to accumulate Fe much faster and Cu much less rapidly than females. Since vitamin D is paramount for Mg absorption, the much reduced exposure to sunlight in the higher latitudes may account for the higher incidence in these areas. Moreover, vitamin B2 is a cofactor for xanthine oxidase, and its deficiency exacerbates the low levels of uric acid caused by high Cu levels, resulting in myelin degeneration. Finally Selenium (Se) and vitamin E prevent lipid peroxidation and EPA and DHA upregulate CuZnSOD. Therefore, supplementation with 100 mg MG, 25 mg vit B6, 10 mg vit B2, 15 mg Zn and 400 IU vit D and E, 100 μg Se, 180 mg EPA and 120 mg DHA per day between 14 and 16 years of age may prevent MS.
Last edited by jimmylegs on Wed Apr 30, 2008 7:18 pm, edited 1 time in total.
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Postby Nenu » Wed Apr 30, 2008 5:10 pm

That is an interesting post Jimmy. Good info in there for sure.
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Postby jimmylegs » Wed Apr 30, 2008 6:00 pm

jeez, what is wrong with the coding?? i guess we can't boldface inside a quote?
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Postby Lyon » Wed Apr 30, 2008 7:10 pm

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Last edited by Lyon on Mon Nov 28, 2011 3:42 pm, edited 2 times in total.
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