new here - scared, lonely, and depressed.

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby jimmylegs » Wed Apr 30, 2008 7:13 pm

so what the heck? ohhhhhhh i wrote it out my bad hahaha! lol at first i didn't even see your bold vs b suggestion bob! just noticed it now. ya i've been skipping the buttons coz they no so worky in firefox. a handcoding brainfart!
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Postby Lyon » Wed Apr 30, 2008 7:28 pm

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Postby jimmylegs » Wed Apr 30, 2008 7:58 pm

lol ya i thought you were just showing off at first ;D but i got it anyway ;)
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Postby Lyon » Wed Apr 30, 2008 8:08 pm

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Postby jimmylegs » Wed Apr 30, 2008 8:57 pm

lmao! ya weird my newest machine is running vista. this just in: it kind of blows.
i guess FF and this editor like to give only me a hard time hehe! right now i'm on the '98 dinosaur and it gives me the same runaround.
i haven't spent any time on the network here so to avoid crawling into the back to get the cable i was just using the relic.
i DID think u were smart, but now your secret is out.

funny quote of the day, from a non-spell-checked environment:
"i can't believe i got strait As this semester!"

and my other brain fart of the day... "piece" of mind. hehehe
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Postby Lyon » Thu May 01, 2008 6:17 am

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Postby jimmylegs » Thu May 01, 2008 8:33 am

lol! i'm pretty sure even '98 has a spell checker of sorts running for me at this forum. it doesn't like lol or i'm for instance. or hwiaopvw for that matter!
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Postby Lyon » Thu May 01, 2008 8:54 am

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Postby EyeDoc » Fri May 02, 2008 2:53 pm

This thread split two ways earlier, and as unsoclicited as it may be, I have an opinion on both topics :)

1. Migraine - What you are describing is called an acephalagic migraine. More commonly, it is called a visual or optic migraine. This is when you have the visual aura of a classic migraine without the headache. You can also experience a blackening of vision as opposed to the light sensations.

2. Optic Neuritis - This is a tough one. You certainly describe symptoms of ON and it is possible to have mild ON without us being able to see inflammation when we look in your eyes. The Uthoff's sign you describe is classic for inflammation of the nerve. All that being said, nothing is 100%. I would be curious to know what the ophthalmologist you visited saw with your peripheral vision.

The other vision problems you describe sound pretty nonspecific. I'll tell you that I experience some strange symptoms like that myself. I don't have a good "eye doctor" explanation for it. it just is :)

Keep your chin up. There are other things out there that cause wonky problems with our eyes that are not MS. Sometimes we have things we cannot explain. Try to not self diagnose yourself to the point of worrying yourself sick.
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Postby SallyDC » Fri May 02, 2008 4:11 pm

Thanks EyeDoc! I did in fact have my peripheral vision tested by the doc and he said it was perfectly normal- and he used some new special machine or something to test it. In fact, I passed every test with flying colors - the red/green tests, the visual acuity test (my prescription for glasses hasn't changed), pupils dilate normally, nothing he says seems out of the ordinary except for the fact that I can just sense something is off, and that it gets blurry after i'm hot. I have an app't. with him again monday morning (his receptionist said that i have to go back to see him again to make sure that i do indeed in fact need an MRI) so we'll see how that goes! If he still doesn't see anything - well, at that point i must just break down and beg for the MRI. I know i need to get one. I just know somethings off.
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Re: new here - scared, lonely, and depressed.

Postby Lyon » Fri May 02, 2008 5:17 pm

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Postby Andesine » Sat May 03, 2008 5:26 am

I had 4 medical eye tests and there was nothing wrong with my eyes, which is when I got the MRI and the MS diagnosis, however, this morning I've been talking to someone who has the same symptoms and it could well be down to the drugs he's taking, either a reaction to the drugs or a Herx effect as a result of the drug.

As previously mentioned Sally, don't panic until there's reason to panic, and even then, don't panic. MS isn't necessarily a life wrecker. I know a lot of people who have it and it really doesn't affect them much at all.
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Postby robbie » Sat May 03, 2008 5:59 am

MS isn't necessarily a life wrecker. I know a lot of people who have it and it really doesn't affect them much at all.


For those of us that ms has affected our lives greatly, all I can say is really live for the now and if you do happen to get bad you have used up all your good time to the fullest.
Had ms for over 19 years now.
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Awaiting MRI Results

Postby kyleb » Sat May 03, 2008 2:12 pm

Hey Sally, I'm awaiting MRI results too, although I haven't suffered any consistent vision problems one thing that stood out in your original note that when the lights were out and there was a bright light in the microwave the light source "moves". I believe I've experienced that last year when I would drive home on the highway at night I'd see what I described as "trails" off the brake lights. I went to an eye doctor and they only said I needed to get a weak prescription.

I too work on computers all day and I'm concerned that if I get diagnosed (had brain and spine MRI last week) that my typing skills will be affected.

Most of my afflictions have to do with running/walking right now, which is why I saw the Neurologist and posted here: http://www.thisisms.com/ftopict-5509.html

Hope to be an active member of this forum. Seems like a great community!
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Postby EyeDoc » Sun May 04, 2008 5:47 pm

SallyDC wrote:Thanks EyeDoc! I did in fact have my peripheral vision tested by the doc and he said it was perfectly normal- and he used some new special machine or something to test it. In fact, I passed every test with flying colors - the red/green tests, the visual acuity test (my prescription for glasses hasn't changed), pupils dilate normally, nothing he says seems out of the ordinary except for the fact that I can just sense something is off, and that it gets blurry after i'm hot. I have an app't. with him again monday morning (his receptionist said that i have to go back to see him again to make sure that i do indeed in fact need an MRI) so we'll see how that goes! If he still doesn't see anything - well, at that point i must just break down and beg for the MRI. I know i need to get one. I just know somethings off.


Well, other than the Uthoff's sign, you seem to be completely negative for optic neuritis. This is a good thing!

Yes, it is strange to have the heat sensitivity, but keep your hopes up :) Nothing is proven until it is proven!
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