hope you can get all better without the roids nenu!
WOOOOOOO HIJACK! lol
yes bob, dx'd feb 1 2006 the day before i was supposed to leave for two semesters in australia. all i wanted was to get rid of that niggling numbness in my feet so i could start my trip with a clean bill of health. worked out great
no i've never taken any pharmaceuticals, not even steroids for this. i was lined up for rebif and had got the baseline liver enzyme tests (sort of - the lab screwed up twice) but i backed out of the deal.
i go to a neuro periodically but he's a peripheral guy. he ordered all my dx testing and i only went to the ms clinic for confirmation (and to get funneled into the rebif track). the peripheral neuro asked if we could have periodic appts to see how i was doing. i guess that's good enough for the ms clinic because they don't ask me how i'm doing... at least they're in the same hospital so maybe they read my file.
so. my condition. i'd say, some improvement, some blips. when things get better, it's been associated with a lot of reading and a change in my nutrition programme. my blips are related to things that i missed at first. at the beginning i was all about vitamins and didn't really know anything about minerals.
i started to develop trouble with my throat later in 2006, but it has largely resolved with the addition of magnesium to my regimen. (my neuro sent me to a throat specialist after our last appt, but that is a whole other dumb story).
i had some transient cognitive problems in the summer of '07, which i would only notice while driving. by late fall i had requested a zinc test which came back deficient. i have been pretty slack getting into the zinc habit because i ran out and didn't replace it til, oh, yesterday.
i keep talking about going for my follow-up zinc test but there the requisition sits... still...
i don't know what got those cognitive issues started but i'm hoping that resolving the zinc deficiency will defend against another episode. and with luck it might fix my throat the rest of the way? we shall see.
i don't think the dx folks reckoned on how malnourished someone so normal-looking could be.
about scans... i was in one of my appts with that peripheral neuro, and we were done. he said is there anything else i can do for you today? and i said umm... can i have a follow-up mri? and he said sure, do you want spine in 2 months, or brain and spine in 4 months? and i said brain and spine in 4 months please, when i get back from my coop work term.
i bought my MRI CD from the hospital so i can compare my scans from dx to last year. how dorky is THAT. but, i am pleased to report that my spinal cord looks a LOT better. brain about the same.