I'm a Brit guy who has just come through Optic Neuritis ( diagnosis and then follow up MRI.) Like a lot of folks I'm now confused - not scared but feeling a weird feeling of "so this is what it feels like to be getting life-changing medical information."
As I said, the ON was diagnosed by an Opthmologist . I then went to a Neurologist and he recommended an MRI. I had the MRI and went back to him - this time he was clearly in a rush or something and phoned the MRI people to find out the result which he relayed to me. I didn't see the scan images and before I knew it I was back in my car!
Apparently I have two "spots" above the "tent" of my brain and one in my "balance apparatus." ( Is this the cerebellum???) He said he couln't DX MS today because I'd need about five of these spots plus the clinical stuff which by the way seems to be the ON and maybe even a bout of Sciatica about four years ago which might be significant hew says. ) He said the outcome was probably as "good as I could expect that day" but that there was a tendency towards MS because of the ON and an MRI that's not clear.
He said I wouldn't need to make another appointment right now as no treatment is necessary ( ON has improved) and that I'd maybe never see him again!
Suddenly I'm driving home somewhat stunned and wishing I'd asked x, y, and z.
When I got home I rang his PA to ask for the scan images to be posted along with the actual narrative from the consultant Radio. I might even post the narrative up here if I get it.
I'm a pragmatic guy. I just feel he didn't want to cause me huge concerns by going into detail around where these spots were, what they might affect ( cognition etc.) Since I'm pretty OK maybe he thinks the next occurence of something will be time enough to get to the next level. I don't know. I feel ( like many people) I might sort of "half" have MS and while the Neuro was very pleasant he too wasn't painting a "don't worry you're fine" picture. He was hard to read - on reflection I think he thinks i will be Dxd in the future and maybe even thought I even knew this too! ( Talk about dancing around an issue!)
Anyway, I feel OK but would like to know for sure, and that will only happen by 1. a second opinion or 2. another clinical evidence or maybe another couple of lesions or something.
So...I suppose I've just joined your club.
God bless you all