Headaches

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Postby jimmylegs » Tue May 13, 2008 11:25 am

good luck nenu hope it all pans out! :)
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Postby Nenu » Tue May 13, 2008 11:51 am

Well, apparently they sell 35mg and up iron supplements, so 35mg it is.

I'm feeling SO much better today.. and I certainly didn't get nearly enough sleep (4 hours?), which usually ends me in feeling wretched, but today I feel good. So yeah, minocycline, bad.
Dx RRMS March 5, 2008.
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Postby cheerleader » Tue May 13, 2008 12:14 pm

Glad you're feeling better, Nenu! Jeff's over his nasty headache today, too. (huge sigh of relief) Think we'll stop the mino for now.
It's like a balancing act, figuring out how to help your body. Sometimes trial and error, too. You have to be your own advocate and researcher. This site has helped me immensely.
Hope you do well on the copaxone and supplements. Jeff's done really well- 14 months, no relapse, no progression.
One day at a time!
best,
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby jimmylegs » Tue May 13, 2008 12:17 pm

is it the waking up at 2am thing again? seriously, try bumping up your mag and zinc for a few days. ask arti if it works. or my parents for that matter hehe!

i've tested "probably deficient" for iron before. my ferrous gluconate comes in a 324mg pill "providing 37.5mg elemental iron".
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Postby Nenu » Tue May 13, 2008 12:37 pm

35mg of elemental iron here

The sleeping issue wasn't that I woke up, it's that I couldn't get to sleep because of the intense head pressure and burning in my mouth. It was horrendous. But today is much much better. Went to my chiro as well, and he worked over a bunch of spots on my neck and I am feeling a lot better :)
Dx RRMS March 5, 2008.
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Postby jimmylegs » Tue May 13, 2008 12:46 pm

ugh i hope it tapers off soon. i thought you had mentioned before that you sometimes have to deal with waking up in the middle of the night too.

anyway hope it all clears up soon, glad you're feeling better somewhat so far :)
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Postby Nenu » Tue May 13, 2008 12:56 pm

You're absolutely correct, I had been waking up during the night thinking I heard my doorbell ring and such. Upped my magnesium as you suggested, and taking my tryptophan nightly and seem to be sleeping well :)
Dx RRMS March 5, 2008.
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Postby jimmylegs » Tue May 13, 2008 1:16 pm

that is good news. now, just as long as this pain thing gets off your back too!!!
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Postby Nenu » Tue May 13, 2008 1:41 pm

jimmylegs wrote:that is good news. now, just as long as this pain thing gets off your back too!!!


Haha, yeah no doubt. I really wish the mouth thing would resolve itself. If it stays on this low, well I think I can manage. It's improved from what it had been before, until the minocycline :(
Dx RRMS March 5, 2008.
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Postby jimmylegs » Tue May 13, 2008 2:03 pm

hey hopefully the iron boost helps so that you don't have to just manage, but can get rid of it altogether.

check this out

Minocycline
Depletion or interference—The medication may deplete or interfere with the absorption or function of the nutrient. Taking these nutrients may help replenish them.
-Calcium
-Iron
-Magnesium
-Vitamin K*
-Zinc
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Postby Nenu » Tue May 13, 2008 2:09 pm

I actually read something else about Vitamin K today, definitely one to check out ;)

WOW I feel SO much better today. Cheer, I hope your S/O is feeling better since getting off minocycline too.
Dx RRMS March 5, 2008.
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Postby jimmylegs » Tue May 13, 2008 2:26 pm

ya i didn't star that vit K thing so now i'm curious why it was starred in the site i was looking at

awesome that you're on the mend! yay!
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Postby jimmylegs » Tue May 13, 2008 2:31 pm

oh there's the star thing:
An asterisk (*) next to an item in the summary indicates that the interaction is supported only by weak, fragmentary, and/or contradictory scientific evidence.

i gather the calcium, iron, mag, and zinc interfere with the efficacy of minocycline as well so looks like it's a two way thing, they just don't play nice.
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Postby Nenu » Tue May 13, 2008 2:35 pm

Well as I said, I can deal with acne, I can't deal with not sleeping and fearing my head's going to blow up.
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Postby jimmylegs » Tue May 13, 2008 2:46 pm

for sure!
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