I get neuropathic pain (in my rt arm/hand, and my rt leg) - definitley neuropathic in origin, because of the ms lesions in my c-spine.
I used to take neurontin 400mg in the morning and the afternoon, then 800mg at night. You feel a bit groggy for the first couple of weeks - I worked up to that dose, but once you are used to it, it is very effective for the pain.
My neuro recently changed me to Lyrica (it only became available in my country a couple of months ago), and I feel less groggy - the pain releif is maybe not as good, but it takes the agony that makes you crabby away, and on those days that the pain would normally be a nagging irritation, it is virtually gone.
Neurontin is an anti-epileptic drug, and they discovered it's use in neuropathic pain sort of 'by accident', so it is prescribed 'off-label' here in my country for ms.I
t is not dependence preducing like regular pain meds. Lyrica is a derivitive of gabapentin (the active ingredient in Neurontin), and has been developed specifically for diabetic neuropathy, which is generally a peripheral neuropathy (not from the CNS), but it works well for neuropathic pain of CNS origin too.
I also take 25mg of amitriptyline at night (it is actually a tri-cyclic antidepressant, but also helps for neuropathic pain), also for the neuropathic pain - the combination of these two drugs really does help, but again, I built up to them to find the right dose and combination under my neuro's supervision.
So hang in there - you will get help, I am just sorry that this neuro didn't at least start you off on something and has left you to suffer. Pain really brings you down - it is so wearying and draining - get some meds, even if you just need them for a couple of months, though in my experience, you might need them for a while.
The thing with these lesions is that you can't tell what residual symptoms will be permanent and which will be transient - until they go! From what I understand, brain-stem lesions are fairly common. I had a teeny on that was responsible for some bad vertigo and vomiting a few years ago, but it resolved completely - no symptoms after that in that area.
But my c-spine lesions were active for a long time (enhancing), and even though I am on Avonex and have not got worse in this area, I have not got better either - so stability has been gained (great), but I still take meds for my symptoms (pain, numbness, weakness, muscle spasms, fatigue etc).
So the upshot of this long rambling post is that:
1. neuropathic pain can be treated by a variety of meds that you can live with and that improve your quality of life;
2. brain-stem lesions are fairly common, and your symptoms fit with it, do you have vertigo or balance issues too?
3. Copaxone should (?) stop you from getting worse, or at least slow that down, but whether or not your brain-stem lesion re-mylenates and your symptoms disappear all together - time will tell. It might disappear completely, it might get better to the point that you only feel it when you are fatigued or over-heated, or you might just have to take the meds for the pain. Bit of a crap-shoot, I know, but you are doing the best you can with the Copaxone and all the supplements you are taking.
All the best.