Temporary paralysis - ten second flashes

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Temporary paralysis - ten second flashes

Postby Damjan » Sun Jul 06, 2008 12:46 pm

Hi to all,

I have a question. For about a month I'm getting partial temporary paralysis to my left hand and parts of my face - mostly lips, chin and the right eye. It happens every few (15 or so) minutes for about 10 seconds - I can't use my left hand, can't speak, I kind of freeze. After 10 seconds or so I get well again.

It's a strange feeling during the "flash" - like having local anaesthesia. I can move my hand though, but the strength is very limited and I hardly have any control. The sensority is almost gone at the time. For example, I can't open a bottle at the time. Even worse, i've dropped plenty of things when it happened, like a cell phone.

Let me mention that I have MS diagnosis for more than 4 years. I'm not on any meds for now even though I've had a fair share of exacerbations - sometimes 5 a year, sometimes none for more than a year. I can still run and ride a bike though, for example. My exacerbations are usually very "slow" (few months) and the remission is never complete. I have had 14 or so lesions on the last MRI.

I also believe that MS is a consequence, not a cause itself. I'm looking at my cause and this may have something to do with it. I'm wondering: has anyone had similar symptoms? What could they mean? Any suggestions? I'm about to call my GP and neuro this week or so since this doesn't get better.

Thank you for your answers.

P.S.: just an anecdote. A friend (who was working in USA) got MS. It was progressing very fast, even faster when she got on Copaxone. She was a biotech post-graduate student (she's PHD now). She was on a wheelchair in few years or even less. She was very much interested in her condition and did not believe that she has MS. She convinced the doctors and together they found the cause for her "MS". As I know she had an operation (don't ask me what exactly was wrong because I don't know) and she recovered completely. She works in Sweden as I know, I didn't hear from her since she got well.

Just some hope. If she wasn't so curious and determined she would probably be dead today - of MS ofifcially. I believe there's a cause for each of our MSes but nobody will come to us and help us - we have to help ourselves and each other. And forums like this can help (I also have a forum for MSers in my country, for 4 years).
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Postby Damjan » Thu Jul 10, 2008 11:45 am

No ideas?

I'm thinking of some possible reasons:
- mini relapses/remissions (but 10 seconds??? - that's what should be called RRMS!)
- MS is causing some kind of ...lepsy (like "narcolepsy" - but only some parts of my body falls asleep)
- it isn't MS at all, something else is causing this (but has to be in CNS because it affects hand and face at the same time) - any ideas here? Any possibility of blood flow problems - some areas don't get enough blood for short periods of time?
- please help with further ideas!

I called my neuro. He finds my problems strange but still thinks that they're caused by MS. He recommended corticosteroids but I didn't feel much better after them the first time (5g in 6 days; had quite severe depression after that). He still didn't mention any CRABs... I'm also not too keen about them even though they are fully covered from the insurance in our country.

Did anyone of you have this kind of problems? Should I ask anywhere else? I doubt that someone would think of MS with (only) my problems...

Thanks.

BTW, I had 2 "flashes" while writing this post...
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Postby Lyon » Thu Jul 10, 2008 12:34 pm

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Postby Damjan » Thu Jul 10, 2008 12:52 pm

I do have official diagnosis for 4 years (based on my neurological status, positive MRI, LP and SEP). Had second MRI scan last year, which confirmed the diagnosis (14 or so lesions).

I talked to my neuro over the phone but he thought it was weird too. I'm not sure what tests should I do next to get the "correct" diagnosis, he didn't mention any other diagnostics...
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Postby cheerleader » Thu Jul 10, 2008 12:59 pm

Facial paralysis and Bell's Palsy are found in Lyme disease. Have you had a complete blood work up for Lyme? Not just western blot, but the whole shebang. Igenex labs in northern California do a thorough test. A Lyme literate doc can help. We had my husband tested and he was negative.

http://www.lymediseaseassociation.org/index.html

Sometimes our hunches are ways our body talks to us. Good for you for listening.
wishing you the best,
AC

PS...not responding to steroids, and a worsening of conditions, are often a sign of Lyme disease, as well.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Lyon » Thu Jul 10, 2008 1:09 pm

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Postby Damjan » Thu Jul 10, 2008 1:38 pm

Thank you both for sharing your thoughts.

First, I have been tested for Lyme. CSF and blood tests were negative during my first real relapse in 2004... I'm from Europe though (Slovenia), thank you for not noticing ;). Maybe I should repeat the test...

Second, I'm 28 (I know, I didn't mention before, sorry). Isn't it a little early for Alzheimer's?
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Postby cheerleader » Thu Jul 10, 2008 1:44 pm

Hi Damjan...
Great English! We couldn't place that Slovenian accent :)
And yes, you're young for alzheimer's.

I think Bob is referring to brain damage and seizures, which can happen at any age. (Bob, so sorry your Mom is having a tough time of it.)

And I apologize for trying to diagnose you over the internet. Glad you had the Lyme tests, though.

keep searching,
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Lyon » Thu Jul 10, 2008 1:48 pm

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Postby Damjan » Fri Jul 11, 2008 12:17 am

Reading the article about seizures:

http://en.wikipedia.org/wiki/Seizure

Seizures can cause involuntary changes in body movement or function, sensation, awareness, or behavior. A seizure can last from a few seconds to status epilepticus, a continuous seizure that will not stop without intervention. Seizure is often associated with a sudden and involuntary contraction of a group of muscles. However, a seizure can also be as subtle as marching numbness of a part of the body, a brief loss of memory, sparkling or flashes, sensing an unpleasant odor, a strange epigastric sensation or a sensation of fear. Therefore seizures are typically classified as motor, sensory, autonomic, emotional or cognitive.


So it looks like a kind of a seizure - I'd say electrically overloaded part of the brain. I do lose ability to speak normally and full awareness during the flash. These are probably caused by MS (look at the possible causes of seizures - one of them is MS).

Now I'd really have to find the cause for my MS because it's causing me more and more troubles. Sound like a simple task but... Where should I start?
Best regards!

A healthy person wants it all. An ill person wants only one thing.
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Postby Lyon » Fri Jul 11, 2008 6:23 am

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Postby Jaded » Sun Jul 13, 2008 2:40 pm

Hi Damjan

Sorry for the late reply.

I do have the same flashes as you detail but in my leg, and they have been happening for about 2 years. Sometimes they get more frequent, I guess that's stress related. I don't have any other symptoms with the flashes though.

I told my neuro about it last time we met but she just shrugged it off.

I am seeing her again soon and will mention it again but I am not expecting any positive response!

Good luck.

J. 8)
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Postby Damjan » Mon Jul 14, 2008 10:28 am

Thank you for your post. I'm obviously not the only one.

Sorry to hear that you're not getting better for two years... How long do your "flashes" usually last? Can you walk at that time? I lose my strength almost completely during those 10 seconds and if it were my leg I would have to stop and hold to something...

Did you have any brain scanning - like EMG - to show what is going on during the flash?
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Postby Jaded » Wed Jul 16, 2008 2:50 pm

Hi Damjan

I have never had it researched.

Actually my first ever ms symptoms were when I completely lost feeling in one leg - just for a few seconds. My leg gave way as I was walking and it was quite distressing. This was in 1989 and I was not diagnosed until 2005 as the symptoms cleeared up by the time I saw a neurologist.

The more recent ones are much lighter, and only affect my calf - there is no loss of use as with the initial ones years ago.
I just feel a momentarty loss of sensation.

Sorry that I cannot help further.

Best wishes - I hope you are able to get some answers.

J .
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