This Is MS Multiple Sclerosis Community: Knowledge & Support

I suspect that my daughter's inoculation with the HPV vaccine has caused her, a previously healthy, active 15 year old, to develop MS (at first thought to be ADEM). Any thoughts?

Dear love-

SO sorry for your daughter's diagnosis. There have been reports made regarding adverse reactions to gardisil. Thoughts are with you during what must be a difficult time in your family. There have never been any conclusive findings on any specific vaccines "causing" MS. Folks have linked their MS to hepatitis vaccines and their flare ups to flu shots. It appears that there is a viral connection to MS...my husband had mono and EBV as a young adult. But as with all things MS, as you will learn...there is nothing definitive (yet.)

This is from the vaccine safety group regarding gardisil...

"Out of the 385 individual GARDASIL adverse event reports made to VAERS, two-thirds required additional medical care and about one-third of all reports were for children 16-years-old and under, with nearly 25 percent of those children having received simultaneously one or more of the 18 vaccines that Merck did not study in combination with GARDASIL. NVIC is calling on the FDA and CDC to warn parents and doctors that GARDASIL should not be combined with other vaccines and that young girls should be monitored for at least 24 hours for syncopal (collapse/fainting) episodes that can be accompanied by seizure activity, as well as symptoms of tingling, numbness and loss of sensation in the fingers and limbs, all of which should be reported to VAERS immediately."

http://www.909shot.com/diseases/HPV/pr022107HPV.htm

Please come here and ask any questions, any time.
We're all with you,
AC

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

PS-
Gardisil has been linked to Guillane Barre syndrome, which can look alot like MS-
http://www.ninds.nih.gov/disorders/gbs/gbs.htm

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

lovelisaz
What is it that makes you think Gardasil is connected with your daughter's MS? I am concerned about having my daughter be given the vaccine. She is 15 also.
Lori

Has your daughter ever had Pneumonia?

_________________
My Starting Point
Understanding MS 101: Doctor Talk and People Talk<br /><br />

Her spinal tap results for mycoplasma pneumoniae "suggest recent infection..." with a 1.6 where a normal range is <=.90. The neurologist also said she tested positive for EBV but the actual report from the Mayo Clinic is very confusing. This is how it reads:
EBV EA-D IgG NEG [NEG]
EBV EA-D IgM EQUIV [NEG]
EBV EBNA-1 IgG POS A [NEG]
SEROLOGICAL DIAGNOSIS OF EBV INFECTION
AE-D EA-D VCA VCA EBNA EBNA
IGM IGG IGM IGG IGG
SUSCEPT/
SERONEG NEG NEG NEG NEG NEG NEG

ACUTE/
CURRENT POS POS POS POS POS NEG

CONVAL/
TRANSIT NEG POS P/N POS P/N P/N

PAST INF NEG NEG NEG POS NEG POS

REACTIVA NEG POS NEG POS NEG POS

EBV EBNA-1 IgM POS A [NEG]
EBV VCA IgG POS A [NEG]
EBV VCA IgM NEG [NEG]

I'm sorry this is so long and detailed but I am hoping maybe someone with some knowledge can help me make sense of this. She had some blood work in January (before the onset of symptoms in May -after her second HPV shot) and the Heterophile, Mono Screen was Negative. Isn't this the same? The neurologist said these lab results are not as thorough as the Mayo Clinic, which makes sense. It just seems odd to me that she was never really sick with mono and now suddenly they want to say this is what caused her MS?

Also, they originally thought she had ADEM. This was all so sudden. About two weeks after her second shot of HPV she started complaining of double vision and progressively worsened to the point where she could barely walk.

If you go to medalerts.org and search the VAERS database for HPV4 (gardasil) and ADEM (in the symtom tab) there are six other reports, if you search HPV4 and multiple sclerosis there are also six reports very similar to my daughter, who is going to now be diagnosed with MS.

There is one story that has made it to the news about a girl in Jacksonville with very similar reaction:

http://www.firstcoastnews.com/news/news ... ryid=95517

And this vaccine is for what? Genital warts?! I can't believe the amount of unnecessary vaccines that are forced on unsuspecting parents these days. If I had a child due to have this vaccine I would withdraw her/him and just talk to them about sexually transmitted diseases. It looks like a very dodgy vaccine.

_________________
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,

suppose to stop you from getting cervical cancer, f!@#ing drugs

_________________
Had ms for over 19 years now.

yeah, word Robbie.
HPV is the human paploma virus, it's really common...I've had it for over 20 years. No warts or symptoms, just some strange looking cells on pap smears. I don't have the type of HPV that causes cancer.

My doc just pushed the meningitis vaccine, menactra, for my teenage son...I did some reading about the association with guillane barre and said "no thanks." He said I was being irrational. ha.

menactra warning

the doc hadn't even heard of problems. argh.
AC

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

All the docs I have mentioned this to have brushed my suspicions off with a laugh, but I know deep down that this had something to do with her medical problems. I guess you could call it a mother's instinct, it is just what I know to be a fact regardless of what they say.

Our three week reign of terror is coming to an end my daughter will be discharged today after a one week hospitalization. She has transverse myelitis and has been diagnosed with ADEM post vaccination of: Gardasil, Menactra, Hepatitis and Flu all on 9/17/09. She quickly deteriorated and was close to being paralized. She was treated with steroids just before her tingling reached her neck. She suffers vision problems, but not optic nerve neuritis. Why won't the CDC stop this madness?

Update -- now going to MGH Pediatric Ctr doctor says maybe ADEM or MS Because bands came back positive and says dx for peds is different ?

I hate to say it, but it seems to be all about the benjamins. Horrid that we do this. We try so hard to prevent every little thing with vaccinations not thinking of how we could be upsetting our body's homeostasis.

You guys are in my prayers. This can't be anything less than your worst nightmare. Going off "Dr's advice" to protect your babies shouldn't harm them. Dr.s can be 'sold' anything from salespeople just like everyone else. I hope your daughters recover and this was just a flared up event. Just awful and I can't imagine how you must feel.

_________________
http://myhopefuljourneyintoactualmsreco ... ogspot.com

I did see at least one report of the swine flu vaccine in the 1970's causing Guillain-Barre syndrome, which causes neurological symptoms. I'd have to do some searching to find links, but it's something to look into.

Do you really think that just "talking" to a teenager about sexually transmitted diseases will solve that kind of problem? Not a chance! Hormones rule and you can only hope that your children make the right decisions at the right time.

If one looks at the responses MS patients have had over the years to the various "approved" medications, you will see that they are all over the map. What appears to help some patients makes other patients very ill. Same disease, same drug, extreme difference in results.

If you then look at the reactions some people have to these various vaccines, you will always get some situations where the patient suffers a serious reaction. The numbers are very, very low but it does happen and when it occurs to you or your child, you don't care about the numbers.

When it comes to medicine, nothing is absolute and to think otherwise is naive. You can only hope that when you make the decision to receive any vaccine, it is an informed decision and you are in the vast majority of people who obtain a lot of benefit.

Harry

I'm really going to put myself out there and share some personal stuff in hopes of answers. First off, I am 27 and have been (faithfully) with my husband for 5 years.

Yesterday, I had to go back to my GP for a second pap smear. My last one, 6 weeks ago, came back showing abnormal cells. This is the first abnormal pap I have ever had, and since I was in my teens I was having yearly paps. The Doc told me that it could possibly be HPV and if this second pap came back progressive, that I would need to be referred to an OB for a biopsy to determine which HPV it is. Fabulous!

Now, in May of this year, my piece of sh!t husband cheated on me. When I found out, I immediately had blood and other tests done to rule out any std's. I was clear until this HPV thing came up. Needless to say, yesterday was a very bad day. But, I'm glad I read about this before being offered any drugs.

lovelisaz and Sunburstnaples, I am so sorry for what has happened to your girls. I'm really hoping that what Loobie said is true, that it's just a flared up event that will pass.

Let's assume I have MS (because it's really looking that way), could that increase my chances of getting HPV? Are immune systems weakened due to MS? I'm not on any supplements or drugs currently and haven't taken anything for HPV.

_________________
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)