First MS hospitalisation

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

First MS hospitalisation

Postby MrsGeorge » Sat Aug 09, 2008 9:02 am

It would appear that tuesday/wednesay's fatigue was building up to something bigger. On thursday things were feeling 'off', friday I took a half day at work so I had some relax time and by the evening both feet and my right leg were numb and weak, along with right arm weakness & increased difficulty walking.

Because it was both feet I was worried so I called the out of hours doctors - they admitted me to hospital for the night. They ran a bunch of tests - kept me up til 4am! They released me at lunch time with a load of methyl-prednisalone & crutches to help me walk.

Feeling kind of grotty from lack of sleep but like some progress has been made. Tho the doc admitted me for iv steroids they wouldn't do it once I got on the ward but gave me oral instead (less agressive apparently).

I felt pretty low for a while but I guess I only have myself to blame, working myself ragged at camp whilst suffering from a cold was not the smartest thing to do. I am getting scared at the rate of relapses - this is the second within 3 months, 3td big one within a year - I hadn't recovered from the last one! I guess I really do need to do less with my life!
User avatar
MrsGeorge
Family Elder
 
Posts: 334
Joined: Mon Dec 10, 2007 4:00 pm

Advertisement

Postby gwa » Sat Aug 09, 2008 10:01 am

When I first started out with MS, I was having a relapse every 3 months just like clock work. Then the relapses got further apart after a couple of years.

You have absolutely got to get rid of all of your "be nice to others" volunteer work so that you can continue to work and have time to take care of yourself.

Good luck.

gwa
User avatar
gwa
Family Elder
 
Posts: 846
Joined: Thu Dec 01, 2005 4:00 pm

Postby carolew » Sat Aug 09, 2008 12:29 pm

I agree and also get rid of your stressors!! they drain the good energy! good Luck and stay strong... Carole
User avatar
carolew
Family Elder
 
Posts: 553
Joined: Fri Nov 05, 2004 4:00 pm
Location: Ottawa, Ont. Canada

Postby Loriyas » Sat Aug 09, 2008 3:41 pm

I also agree! Getting someone to clean for you and lighten you load has now become a "need" rather than a "want". Do whatever you have to do to get someone to come into help. Your focus needs to be on your health-that is the most important.

Hope you feel better quickly!

Lori
Loriyas
Family Elder
 
Posts: 594
Joined: Sun Apr 02, 2006 3:00 pm
Location: Naples, FL

Postby Wonderfulworld » Sun Aug 10, 2008 12:11 pm

Mrs George sorry to hear MS has flared up on you.

Don't feel that because you've had a few relapses in a short space of time that it will be just getting worse from now on - not necessarily so. I was having 4 relapses a year a few years ago. Now I have about 1 a year and very mild at that. Long may that continue (she says frantically - Aug/Sept has always been my high-risk time of year! )

The thing is that it's a warning from your body to start consistently taking it easier from now on. I felt, for me, it was like a bereavement. I wanted to keep going out each weekend dancing, drinking, smoking, out til 4am, working full-time, doing classes in the evenings, swimming, cycling, tai-chi, etc etc. It took me so long to accept that I wasn't normal any more, and that I would end up in bits if I didn't cut down what I was doing.

Sometimes even now I feel jealous of my parents for example or older people in work - people who are 30 or 40 years older than me have better energy and stamina, but thems the breaks with MS.

PLEASE be good to yourself now and hire that cleaner, cut out the volunteer work, and take the time you need to get over this relapse. :wink:
Wonderfulworld
Family Elder
 
Posts: 773
Joined: Sun Aug 27, 2006 3:00 pm
Location: Ireland

Postby Loobie » Sun Aug 10, 2008 12:14 pm

I would have philosophically disagreed with GWA until I started to only have enough energy to keep myself afloat. Perspective really changes then when the gas in your tank is just enough to make sure you don't piss your pants, fall and hurt yourself or anything else. An epiphany this weekend: I have become one of those that others need to help. Not an easy emotional transition or testosterologically conducive (new loobie word). That epiphany was not the normal type which usually result in some sort of improvement in your life. I guess finally letting others help and giving in to that will give me more energy. I was killing myself trying to do more than I was capable of and then paying the price. Camping was my hard one. I had to pull back even more where now I only pack my bag and only drive the trailer. My wife and daughter now carry everything. I get a chair and put in in front of the fridge' and put away the stuff from the coolers. Damn it's hard, but now I may have enough energy to enjoy the rest of the day.

I would overdo it and then sit around and get all upset because I couldn't do more. Then GWA's voice was in the back of my head and said "hey dummy, you can't do that shit anymore so quit banging your head against the ground and then feeling sorry for yourself because what you knew would happen, happenned". It's all part of the adaptation to the new you. I don't like it, but I also don't want to be a humorless asshole all the time anymore either. I'd rather be a funny asshole :lol: .
User avatar
Loobie
Family Elder
 
Posts: 2196
Joined: Mon Sep 11, 2006 3:00 pm
Location: Dayton, Ohio USA

Postby MrsGeorge » Sun Aug 10, 2008 1:46 pm

Thanks guys.

I think you hit the nail on the head wonderfulworld. I am terrified to admit that I need help and that I can't do things anymore. I am used to filling my life so full of things, being the person who runs around after everyone else. I am really bad at handing over control and accepting help from other people.

Today was a family party, my sisters baby boys were christened (they were 4 weeks old on friday - I'll flood the pics thread when I get chance)! It broke my heart that I could not carry the babies anywhere - I could feed and cuddle and change them both (and did) but I couldn't carry them accross the room to the changing table - someone else had to do it for me. I also found it hard to be with my family - I really find the sympathy hard - and all the questinos - my aunt asked me if my legs would get better and I couldn't answer because I don't want to think about the future - I am just too scared to - cowardly I know.

I finally caved and started using crutches instead of a walking stick and it is so so so much better. But I still feel like an idiot. I haven't told my manager yet that I was in hospital over the weekend but i HAVE to be at work at monday.

I am going to step back and re-evaluate how much I do. I can't afford to hire a cleaner but I had a serious conversation with adam and he finally gets it. Since I was admitted to hospital he has been doing so much for me. If it continues like this we can do it!

Sorry this turned into a rant!

George
User avatar
MrsGeorge
Family Elder
 
Posts: 334
Joined: Mon Dec 10, 2007 4:00 pm

Postby VodooDoll » Sun Aug 10, 2008 2:36 pm

MrsGeorge,

Sorry to hear of your set back, having a flare up just sucks.

I came off of 12 weeks of short term disablity and started back to work at reduced hours this past monday. The past 12 weeks have really taught me to take care of myself and not do too much extra. Had a lot of time to reflect and decide what's important.

Hope things go well for you.
User avatar
VodooDoll
Family Member
 
Posts: 30
Joined: Sat Jul 12, 2008 3:00 pm
Location: California

Postby gwa » Sun Aug 10, 2008 2:39 pm

Loobie wrote:
Then GWA's voice was in the back of my head and said "hey dummy, you can't do that shit anymore so quit banging your head against the ground and then feeling sorry for yourself because what you knew would happen, happenned". :lol: .


You must be a mind reader too. It is difficult to admit that you can't do everything that you have been used to doing.

We will all make it through as many others before us have done. This disease is a character building experience and constant adjustments must be made or a person will go nuts.

gwa
User avatar
gwa
Family Elder
 
Posts: 846
Joined: Thu Dec 01, 2005 4:00 pm

Postby Lyon » Mon Aug 11, 2008 5:43 pm

.
Last edited by Lyon on Sun Nov 27, 2011 2:51 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Cold/flu connection?

Postby lyndacarol » Thu Aug 14, 2008 5:26 pm

MrsGeorge, in your initial post here, you wrote:
I felt pretty low for a while but I guess I only have myself to blame, working myself ragged at camp whilst suffering from a cold was not the smartest thing to do

Someone else here has observed that his exacerbations follow colds/flu. Could this be your pattern, too? Temporary worsening of symptoms is often mentioned in MS literature--frankly, I think mucus (and insulin) plays a role in this process.
User avatar
lyndacarol
Family Elder
 
Posts: 2312
Joined: Thu Dec 22, 2005 4:00 pm


Return to General Discussion

Who is online

Users browsing this forum: Celeste485, grandsons4


Contact us | Terms of Service