Wonderfulworld wrote:The big problem is lipoatrophy. My legs and butt are SEVERELY damaged now. I usually avoid looking at them but recently had a good look and I am horrified. I have seen pictures of Lipo but mine is much more severe than any pic - it's very widespread. It basically looks as if my whole thigh and legs to the side have been dented in or out. I have huge dep indentations on my butt too. I have not injected into any of these areas in 2 years and the damage is getting much worse. I don't want to go swimming and more or even look in the mirror. I am unable to look at myself anymore.
The bottom (ha!) line is that my MS is stable. It was going up to EDSS 9 during relapses 10 years ago, so obviously I can't go back to that. Do I just keep on Copaxone and ignore my lipo? I mean, all along, I have focused on the situation that my legs are WORKING now, and surely that's more important, but I am scared about the lipo too. I see my neuro in 3 weeks.
It seems that for some people damage stopped occurring when they stopped injecting at that site, or injected every other day, but sadly that doesn't seem to apply to you.
I read somewhere that you should choose seven injection sites and be scrupulous about rotating them… were you ever told this?
Patients with fair or red hair were also more at risk, and some developed a form of diabetes.
Well, this is even more interesting. I saw my neurologist today and he wants me to stay on Copaxone. It is a bit of a no-brainer really. My EDSS is very low, I am doing very well 10 years after diagnosis, and the other 2 options for me - Mitoxantrone or Tysabri, both carry higher potential risks than I'd care to mess with at the moment.Teva seem to have suggested plastic surgery and implants to some people, which to me sounds like arrogance and contempt of the highest, (or lowest), orde
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