I have MS. Recently diagnosed in Feb 2008 after an incident in Jan 2008. I was orginally placed on Betaseron which I toughed out for a few months but could not deal with how sick it made me. I was also on Baclofen and Provigel. As of July I started Copaxone and I stopped the Provegil and Baclofen ( both didn't really do alot for me and I was sick of taking them just to take them).
Recently in the last 10 days or so I have felt at my all time worst in terms of pain, dizziness, lightheaded..and as of 48 hours extreme chills and being so cold my teeth chatter. I do not have a fever at all.
I am in the process of changing Neuro Docs and do not see the new one until August 25. This is tough for me as I'm a Nurse but sad to say I never really knew much about MS. I feel silly at times like I should know more or know better but I just do not about this specific disease.
I'm at a loss as to how to tell the difference between what I'm feeling in terms of is it related to MS or the actual Drug making me sick. I can't believe that people with MS feel this sick every day and suffer this much pain everyday. I'm fighting hard to maintain my life as it was by walking, working, and going about my life. I do rest when needed but I guess what I'm saying ( sorry for not making sense I'm very upset at the moment) is how does one tell if they are sick from the drugs or sick from the MS itself.
I can't imagine that everyday of my life I will feel this awful. I have a high pain tolerance and I rarely complain but I've reached a point where I cannot deal with my life in this manner. I know things could always be worse but I just feel so sick every single day. I thought once I started treatment, I would stablize and be able to at least have a decent quality of life.
I just wondered if anyone could help me out with this. My pain is mainly located in my hips, upper legs. My right arm is very weak. My lesions are on the left side of my brain so that will explain that. Nevertheless I just can't imagine this is how my life will be.
I've had bad side affects with Betaseron. With Copaxone I seemed to do ok until recently but Im not sure if maybe its just the MS or how do you even know if you are having some sort of flare up.
Im sorry Im at a loss, even being a Nurse, I"m just at a loss right now. One minute life was going great and one day out of nowhere I was attacked by this Monster and now everything is completely different and Im fighting it HARD as anything. All those around me see me fighting it hard and Im not letting MS win.
Thank you for your time. Sorry for the pity party....
I'm changing Neuro Docs due to the clinic I'm in is simply too big, see's too many patients and things fall through the cracks. They are good but I'd rather be part of a smaller group of docs. I'll be seeing Duke Doctors. They are known to be great in Neurology so I pray this helps.
Thank you in advance for your time.